Merry Christmas

I just came from the Alzheimer’s offices. Its still October and 70 degrees outside. Yet my assignment was to write a blog about Christmas, but not the usual “folderol”.

The disease, Alzheimer’s, has been around year after year for more than 100 years. But ole friend Santa has been coming year after year for more years than Alzheimer’s. I have Alzheimer’s. Looking forward to Santa’s visit year after year never gets old. I’m 89 going on 90. I’ve seen good years and some not so great.

I still remember the stock market crash of 1929. I was 10 years old. Prior to the crash, Dad was Secretary-Treasurer of the Ford Motor Company in Grand Rapids, Michigan. After the crash he was unemployed for years. So was my mother.

Just before the 1929 depression I can recall the Christmas of 1926. It was a special Christmas to a lad of seven. I had asked Santa for a tool box, not the flimsy cardboard kind that little kids get, but the big “boxy” kind. A big one that would hold a hand saw, hammers, screw drivers and all kinds of stuff. You know the kind of tools a seven year old would need to build a dog house for my fox terrier friend “Pepper”. Pepper came as a puppy on my birthday in August of 1926. From August to December I kept bugging Dad for a tool box. Looking and looking. Hoping and hoping.

Early in December 1926 a letter came from the North Pole. It was addressed to my Dad “to the attention of John Childs”. I guess Santa thought a seven year old could not read, but I could. I was in the third grade at Sigsbee Street School. I was big enough to ride my bicycle to and from school crossing several busy streets all by myself!

Here’s the typed letter Santa wrote to Dad:

Dear Mr. Childs,

Your son John wants a tool chest for Christmas. I have looked all through my toys and I find, the tool chests which I have are all made for very small boys, and they would not do at all for him. I haven’t time to make one strong enough for him this year, and I thought that maybe you could help me out.

Why don’t you buy the lumber and nails and paint and make the chest yourself. Then if John is a very good boy, I may get him some tools to fit the chest. I am not really sure that I will bring his tools, because some boys are careless when they get tools and cut and pound things that they should not and also cut their hands. Anyway I am sure that John will be good enough so that I can bring him something.

You think it over about making the tool chest.

Merry Christmas,

Santa Claus (signed)

And sure enough Santa visited 605 Giddings Avenue, Grand Rapids, Michigan that 1926 year. I’ve seen a lot of Christmases since then, but that one still stays in my memory bank. On that Christmas morning, I even received a note from Santa. He wrote the following:
(hand written note)

Dear John,

I like your tool chest. I hope you will take good care of it and your tools. Don’t pound or cut anything you should not.

Lots of Love,

Santa Claus

And I wrote this note to my (Santa) Dad:
(hand written note - 12/25/26)

Daddy Dear

I love you. Thank you for making my tool chest. Merry Christmas.

John T. Childs

In reality that tool chest is a nice piece of furniture. It is 36” long x 20” high and 18” deep. It was painted red. Today the red has turned brownish. It is a coveted piece of furniture in our den. It has a special place at the end of our sofa and has been a conversation piece ever since its birth in 1926.

Lifting up the cover, I can show visitors the letters I wrote to Santa and his reply. They are pasted inside the cover and have turned yellow with age - 82 years old.

Each year we look forward to Christmas . . . .

And each year we look forward . . . . . . to a cure for Alzheimer’s.

Merry Christmas.

This blog was written by a man diagnosed with Alzheimer’s. He will be 90 in ‘09.

Inside the Talking Donut

The good doctor said he needs to put a stint in my belly. Oh ya?? I’m not sure I should agree with his diagnosis. The good doctor said he found another blockage in my artery. A few weeks ago he removed a blockage in my left leg. He performed an Angioplasty. I spent the night in the hospital and went home the next day.

Now he tells me a have a blockage near my belly button. Quite odd I thought. But he showed pictures of the blockage and now I am a believer.

So, the first step in the procedure is to get a blood test at the Baton Rouge Clinic. Here I go walking into the waiting room. I saw a line of people the length of the room. I’m probably the 19th person in line. But the line moves fast. Some patients go to get a blood test; some go to get an x-ray. I’m scheduled for both.

I’ve been to the lab so many times I always ask for Mrs. Dorothy. She has been drawing blood for more than 12 years and is an expert. At least I think so. My 89 year old veins in both arms are small and hidden. So Mrs. Dorothy decided to draw the blood from the back of my left hand. She wrapped the wound in an ace gauze bandage.

While I am waiting for the doctor to read my blood sample, I am sitting in another small waiting room. Patients by the dozen go in and out of the x-ray-ray room. Jean went to the desk to check to see is the blood test had been lost. But alas it was not lost but in the line to be read.

Meanwhile, I went to the men’s room. Good thing because when I came back they told me I was next for the x-ray room. Three nurses surrounded me in the x-ray room. One asked questions, listened and the other recorded my responses. The third said she would be putting a needle in my arm and inject some medicine. She told me it might feel like you have to “go” but don’t! We do not want you to wet your pants. (Nor do I want to!!)

The x-ray machine was not like others I have seen. This one looked about 8” tall and had a sliding table that slid into a large hole in the donut. The apparatus reminded me of a donut. The nurse said the medicine was warm and she talked to me as she injected the medicine.

So, with me on my back and my hands over my head I slid into the talking donut. It said, “Hold your breath.” “Now breathe.” The message was repeated 5 or 6 times. Then the nurse said I could pull up my pants (they were down at my ankles) and go home. What a relief!

Great words -- “Go Home”. And do I did. Jean helped me to the car and off we went. “Home”.
A great place to be! A great place to be waiting for instruction regarding upcoming operation.

This blog was written by a man who has been diagnosed with Alzheimer’s . He will be 90 in ‘09. He is a volunteer with Alzheimer’s Services.

CNNhealth.com

Click the link above to read tips on how to handle a situation when your loved one may not recognize you.

Doctor Visits

Taking the person you care for to the doctor is an important role as a caregiver, and planning ahead can lead to better care for the patient and less stress for you. Listed below is a checklist to help you make the right decision and aid in making the process go more smoothly.

1. Knowing when to take someone to the doctor. You should take someone to the doctor for regular check-ups if you notice any change in the persons health (both mental and physical), if the medications the persons are on are not working, and of course for any sudden injuries or illnesses.

2. Preparing for the appointment. Before going to the appointment try to help the person track the symptoms leading up to this doctors visit. Try to keep track of changes in eating habits, moods, and bodily functions. Assist in writing questions to ask the doctor, and then prioritize them in case the doctor doesn’t have time to answer all the questions. Schedule the appointment for the person’s best time of day, and remember to call and confirm the appointment.

3. What do you need to bring with you.
1. Insurance Cards
2. The person’s medical history
3. List of over-the-counter and prescribed medications and supplements
4. A health care directive (if the person has one)
5. A list of other health care providers the person is seeing
6. Paper and pencil to take notes
7. Necessary equipment like walkers, hearing aids, etc.
8. Calendar or datebook for scheduling follow-up visits.

4. During the appointment you can be very helpful. You should talk to the person about the role that they want you to take during the visit. Ask them how you can best help. Find out if the person would like to talk privately with the doctor or if they want you to be in there with them (this may not be an option if the person is suffering from memory loss). Encourage the person to talk honestly with the doctor about his or her symptoms.

5. If the person needs assistance you should go in with them in the appointment. Be sure to ask the doctor to clarify any confusing issues you may have, any side effects that may occur, and what you should do if there are complications.

6. You should talk to the doctor yourself if the person is too ill or suffers from memory loss or dementia. If you have questions about the treatment plan or follow-up options, or changes to expect in the person’s condition, you should also talk to the doctor yourself.

7. After the visit make sure to review your notes. Discuss the visit with the person being cared for, ask the person if they have any further questions, review any new prescriptions, put the next appointment on the calendar, call and ask for test results (if applicable), ask the doctors office to schedule an appointment with a specialist if needed, and finally do something nice for yourself. Taking care of the caregiver is important too!

Charlie's Place Article in the Advocate

Please click here to read the article written about Charlie's Place, the Alzheimer's Services Respite Center, that was featured on the front page of the People Section in Sunday's Advocate. The article was wonderful! The pictures were perfect!
Thank you, Debra Lemoine (Advocate Staff Writer) and Liz Condo (Advocate Photojournalist), who visited Charlie's Place a few weeks ago and captured what goes on at our Respite Center so that others in our community can see it as well. You have helped us create a great awareness of the programs and services we offer here at Alzheimer's Services!

Making Mealtime Easier

Meal time can be a very difficult task for people suffering from memory loss or confusion, but there are a few tips that can help make it simpler and easier. The first thing to remember is to have a set meal time. Eating at a regular time everyday makes it easier and less stressful on the person. Some times it may be necessary to allow the person to have smaller more frequent meals. You should also remember to give clear and simple instructions to help them throughout the process. Repeat the instructions clearly and slowly using simple words to coach the person through the meal. The third thing is to avoid and reduce distractions. This can be achieved by simply allowing the person to use the bathroom before starting a meal, using solid colored place settings, and by removing all unnecessary items from the table. If the person does get distracted you can take a break and return to the meal later. Preparing the meal ahead of time, such as buttering bread and cutting sandwiches into squares, also cuts down on the distractions. You should always serve meals in a calm environment and with utensils that are easy to use. It may be necessary to use safety items such as rubber place mats, dishes with suction cups, or even plastic dishes with spill proof cups. Sometimes it is easier to allow the person to eat with his or her hands, but if you do so remember to use foods that can be easily picked up and avoid smaller foods that could cause problems handling and chewing. You should serve foods the way the person usually eats them. Do not try to get them to eat something they never liked before. If they did not like it then they probably will not like it now. Always check the temperature of the foods before serving them. The person may not notice that it is hot even if there is steam coming from it. Also make sure the person is chewing food well. If you notice they are having trouble chewing it may be necessary to cut them into smaller pieces, serve softer foods, or puree foods in the blender. Always watch for signs of choking, and it would be beneficial to learn the Heimlich maneuver just in case. Speak with your physician about changes in appetite. Eating out is not recommended, but if you must you should pick a calm place with the least distractions. A familiar restaurant also cuts down on the stress.

2008 Walk/Run to Remember

This year's 2008 Walk/Run to Remember was a GREAT SUCCESS!!!! Over $275,000 was raised by this event, and of that total amount, $105,000 walk sponsors, donors and participants!
Thank you to all who participated, volunteered, donated, and sponsored this awareness event which supports the mission of Alzheimer's Services of the Capital Area! Know that all funds raised here, stay here.


Here are just a few pictures from the event held October 18th. For all those who were able to come out, we hope that you enjoyed the Walk/Run and the BEAUTIFUL weather!

The Boys Scout Troop from St. Aloysius Catholic Church in Central, LA, present the US and Louisiana Flags.


Larry Schexnaydre (left) and friend sing the National Anthem.


Reverend Raymond Jetson, from Star Hill Walkers Team, says the Invocation.


Pat Hoffman (left), the Alzheimer's Services Board President, and Baton Rouge Mayor-President Kip Holden address the crowd and present the proclamation for the Walk/Run to Remember.


Runner's starting the race. Click here to see the race results.

3 Ladies from the E. Eric Guirard Team gearing up for the walk.


Jerry Romero (far left) with his team at the walk.
Two very proud volunteers at the walk showing off their fabulous t-shirts!

Two of our youngest supporters at the event with the Big Bad Bourgeois Team.

Lamar Team members with the Walk/Run to Remember logo design winner, Jay Watson (far left).

Mark your calendars for next year's Walk/Run to Remember. It is tentatively set for Saturday, September 26th at the LSU "Old Front Nine" !

CNN ARTICLE: Ginkgo Doesn't Cut Alzheimer's and Dementia Risk

http://www.cnn.com/2008/HEALTH/conditions/11/18/healthmag.ginko.dementia/index.html?eref=time_health

CNN Article: 5 Ways to Keeps Alzheimer's Away

http://www.cnn.com/2008/HEALTH/conditions/11/20/ep.alzheimers.brain.exercise/index.html

Long Distance Caregiving

Many people with Alzheimers who have specific needs have loved ones that live in another town or state. These are some of the best ways that someone can deal with the challenges of making sure that the person is getting what they need. It is important to make regularly scheduled visits to the person in need. Having a set time, taking turns with other relatives and even having friends that might live nearby check up on the person is very helpful. If necessary, arrange for a shopping trip, doctor’s appointments or a nice afternoon lunch or evening dinner. It is also important to ask the person what kind of needs he or she might want addressed during visits. Planning regular check-in times can give both parties peace of mind at the right time. A nightly phone call is a great way to keep up with each other.

When a person in need lives in a different place, it is important to have contact information for necessities in that city or town. Having a local phone book for the area can provide a good start for contacting doctors, pharmacies, or other important businesses that a loved one might need. It is also a good idea to keep a notebook or folder with a list of phone numbers that can provide quick access to the most important people. Also keep copies of medical records, Social Security cards, Medicare cards, and important legal documents. These could come in handy when least expected.

Another important aspect of long distance care giving is making sure that people in the community know what the situation is. Ask health care professionals to report any changes in health. Also, find out if any organizations around the city can provide assistance or a social atmosphere for the person to engage in.

All of these suggestions are good starting points for taking on long distance care of elderly adults.

A Taste of Sand

Every fall, Michelle, our daughter, makes her way from Houma to Gulf Shores. Jean and I are usually invited. We look forward to the vacation in the sun and sand.

One of the great benefits of going at that time of year is to see if any turtle nests have been marked off on the beach. We have never seen the large mature female turtle lay her eggs in the sand. However, we look forward to hearing the crackle of hatching eggs and see baby turtles on their journey to the water.

During the late summer, the local Gulf residents watch daily to see if tell-tale trails have been made in the sand. If found that indicates a female turtle has made a nest. The turtle watches then marks the spot by putting up a fence of black plastic to keep animals from digging up the eggs. This also lets people know that the eggs are buried there. A notice of the day the nest was found is attached to the fence so that hatching time can be determined.

When it is time for a nest to begin hatching, the turtle watchers divide up into teams and rotate their night watch. Some have done this for years and are eager to teach others about turtle watching. A trench of about 6 inches deep is made from the nest to the bath-warm Gulf waters. A wall is made on each side of the trench so that young turtles can not climb over and be lost on the beach. The trench could be 25’ to 50’ long from nest to the water.

Usually one of the team members has a stethoscope. Periodically a leader listens to the sand to determine if eggs are beginning to hatch. Eggs hatch at night. We were there about 11 PM when the captain of the team indicated eggs were hatching. He called for no talking. Everyone must be still. He motioned for the turtle counters to take their post. Each turtle counter was about 10-12 feet from the other all the way from the nest to the water’s edge.

The function of the turtle watchers is two fold. To count every baby turtle as it waddles its way to the water and secondly, to keep a sharp eye on the little ones to make sure none climbed out of the trench. It was pitch dark the night we were there, and none of the turtles were lost, even though occasionally one would try to climb the wall and get out of the trench. If a wayward baby was spotted, a volunteer would put the baby back in the trench and guide it in the direction of the Gulf. Anyone handling the turtles had to wear plastic gloves to avoid contamination.

What a great sight! We saw about 125 little baby turtles, minutes old, scramble down the sandy runway to the water. They started to swim as if swimming was second nature to them. We wished them God’s best and said good night to all.

About 20 years from now a few of the baby females we saw will come back to where they were born to repeat the life cycle all over again. Legend tells us the turtle recognizes the beach by the taste of the sand and knows she is back home.

What a memory! A taste of the sand! And back home!

This blog was written by a man who has been diagnosed with Alzheimer’s. He will be 90 in ’09.

Lunch 'N Learn October 2008

Summary of Home Safety Checklist
Speaker: Carolyn Rubino, M.Ed., LOTR
Occupational Therapist, OLOL


Ms. Rubino outlined safety steps that caregivers should take to assist those who have been diagnosed with Alzheimer’s or related dementia.

IN THE HOME:
* The bathroom is the place where most falls and accidents occur. Therefore, use handrails whenever possible.
* Remove throw rugs that could cause falls.
* Use grab bars when getting in and out of the tub or shower.
* Plastic bathtub/shower mats are not recommended. Use soft rubber mats for safety.
* Test the temperature of bath water. Keep it lower than 120 degrees.
* Soap-on-a-rope is great for patients who have difficulty in locating the soap. If unable to find soap- on-a-rope in stores, you may have to design your own.
* Apply colored decals to windows and glass doors so that patients can clearly see the area in front of them.
* Remove objects that block walking paths.
* Use handrails to give directions to various room, e.g. to bathroom; to bedroom, etc.
* Place phones within easy reach. Cell phones are for use anywhere in the home.
* Arrange furniture for the convenience of the patient.
* Be sure extension cords and electrical wires are not under carpets or throw rugs and never in walkways.
* Night lights should be used in hallways, or, where extra low-light is needed.
* Deep pile rugs can be hazardous for people who use a cane, walker or wheelchair.
* Avoid carpeting/flooring with dark patterns. These may look like holes to a patient.
* Use frosted bulbs to reduce glare in walking areas to prevent accidents.
* Smoke alarms should be in all areas of the home and checked regularly to be sure batteries are working.
* If step stools are needed, be sure they are placed out of the way when not in use.
* Label cabinets with pictures of what is inside.
* If stairs are in the home, be sure handrails are used. The stairs should be well lit and colored tape can be used to identify each step, especially the top and bottom steps. Some caregivers install a green tape at the top step and a red tape at the bottom step.
* Lay out clothes for the patient in the order in which they are to be worn; e.g. undergarments first, shoes last, etc.
* Every home should have an evacuation plan in case of emergency.


NOTE:
Ms. Rubino had a table display of various items that could be used by patients with dementia; e.g. table
utensils with the handles wrapped in a wash cloth to make holding easier; extension poles with grippers for
items that are normally out of reach; cloth or vinyl aprons to catch spills; plates that are divided into sections
to separate the food, etc., etc., etc.

National Alzheimer's Awareness Month

Nov. 13th Alzheimer’s Foundation of America (AFA)
National Commemorative Candle Lighting

Alzheimer’s Services of the Capital Area, along with other national agencies, will be honoring all those people who have passed away with Alzheimer’s disease or related disorders, as well as those who are currently suffering with the disease. For information on obtaining a candle lighting packet, please contact our office.

Nov. 14th Maximize Your Memory Day!

The event is sponsored by Amedisys Home Health Services and Our Lady of Mercy Catholic Church. It will be held in the Our Lady of Mercy Church Parish Activity Center from 10 a.m. to 2:30 p.m.
Registration begins at 9 a.m. Presentation topics include:
*Coping as a Caregiver
*AD: What We Know & What We Need to Know
*Medicare/Long-Term Planning
*Spirituality and Alzheimer’s
The event will include health screenings, food, fitness, exhibits, door prizes and fun. Please RSVP by Friday, November 7th by calling (225) 334-7494.

Research Suggests Ways to Delay Alzheimer's

Research suggests that cognitive and social activities may protect against Alzheimer's. Click the following link to read the article:

http://www.avma.org/onlnews/javma/nov08/081115g.asp

DRAINO

We used Draino to clean clogged sink drains. We’d pour a cup of Draino into the plugged drain, and “poof” it would make the clog disappear. Down the drain. Great stuff!

We raised three of our grandchildren, Rachel, Angela and John. Rachel was a student at Southeastern University a few miles east of Baton Rouge. She loves pets and seemed to be a magnet for stray dogs and cats.

One rainy Sunday afternoon she pulled into her assigned parking lot at college. When she got out of her car she heard a kitten crying. At first she did not see the little kitten but following the cry, she found the kitten. Its back legs were caught in a sewer drain in the parking lot. Rachel feared someone would run over the tiny kitten so she carefully eased the kitten from the drain. The kitten was so small it fit in the palm of Rachel’s hand. The poor little thing was wet and cold and crying for its mother.

Pets are not allowed in the college dorm, but that didn’t bother Rachel. Into the dorm she went, kitten in hand. Rachel talked the dorm monitor into letting her keep the kitten - just overnight - until she could bring the little fur ball home. Rachel asked some of the nursing students what to feed the kitten. She then drove to Wal-Mart to get baby animal formula and a small, very small, feeding bottle.

Rachel called her grandmother (my wife Jean) and told her the story of the cold and wet baby kitten. After much begging and pleading Rachel convinced her grandmother she could bring the kitten home and we would keep her only until she was old enough to be weaned. Then Rachel was to find the kitten a good home.

I named the kitten Draino. That did not sit well with Rachel so she re-named her Princess. We took the kitten to the vet to be sure we were caring and feeding her properly. The vet said she weighed one-tenth of a pound and he thought she was about two weeks old. Princess was so tiny that she fit into an empty coffee cup. We have a picture to prove it. Jean, Rachel and Angela took turns feeding Princess every three hours around the clock. I slept well every night!

After Princess (Draino) had been here for about two months, Rachel asked if it was time to find her a good home. Jean said no. The kitty was so spoiled that no one else could take care of her. So Princess became another member of the household along with Pepper (Rachel’s other cat), Mittens (Angela’s dog) and Buttons (young John’s dog).

Now, years after that experience, Princess still lives with us. Rachel, Angela and John are on their own and left all their pets with grandma and papa to feed, care for and enjoy. Don’t all grandparents do that??!!

This blog was written by a person diagnosed with Alzheimer’s. He’ll be 90 in '09.

Hummers….HUMM MMM! Humm mmmm!

Some people hum. You know the kind that stand (or sit) in line waiting for a table at a restaurant. Sometimes these hummers drum or tap a tune with their fingers on a bench or seat. I guess they “hum” with their fingers. Perhaps it is a nervous reaction, or, maybe it keeps them happy and busy.

But, I’m not thinking about those kinds of hummers. The kinds of hummers I’m thinking about zoom past my breakfast nook windows about 60 mph. Zoom up and down and flit around. You see, I have an overstuffed rocking chair at the end of three bay windows in our nook. My sweet wife, Jean, made special seat covers for the overstuffed rocker. Made especially for me. And I sure do enjoy the rocker.

I can sit and rock and watch these little green humming birds dart from one bird feeder to another. This year we put out four humming bird feeders. One on each side of the three bay windows in the nook, and one on the live oak tree about 20 feet in front of the windows. The pesky squirrels like to drain the nectar from the one on the tree. But we don’t mind. They are God’s creatures too. And we feed them as well.

We’ve had more than a half dozen hummers fighting for a place to land on one of the feeders. Sometimes we see a ruby throated hummer. He’s beautiful. He has a ruby colored neck. The rest of his body is green, with a cream colored belly.

Hummers are noted for their acrobatic flights. I can’t see the wings move while in flight but, when they rest on the perch of the feeder I can get a good look at them. They have long beaks and get nectar by sticking them into an opening in the feeder. Then, they stick their long tongues into the bowl. They do not peck. Like a dog, they lap to get the nectar.

Most North American hummers can tolerate cold for a few days as long as food is available. They build quantities of body fat for the long trip to South America for the winter months. Hummers are amazing creatures. In many respects they are like ordinary birds, but their marvelous adaptation enables them to live in extraordinary ways.

It is October now and soon our hummers will be leaving for winter vacation. Still they come daily to dart and dance from feeder to feeder to my delight. They are wonderful. Their antics keep me busy watching. God bless them! They are so beautiful!

Jean and I plan to donate some humming bird feeders to Charlie’s Place. When I go there I can keep up with the hummers at Charlie’s. I’d like that. Charlie’s Place has a beautiful garden already. I’m sure the hummers will enjoy it. And so will I!


This blog was written by a person who has been diagnosed with a mild case of AD. He will be 90 in ’09.

Thank you!

Belinda,

Thank you for your kind words toward Alzheimer's Services and toward our volunteer blogger. We appreciate your help here at the office and look forward to working with you again. Alzheimer's Services is indeed a wonderful place for families to come for education and support while dealing with a loved one who has Alzheimer's or a related form of dementia.

Thank you,

Alzheimer's Services of the Capital Area Staff

Alzheimer’s Services from Service Learning Student Perspective

This is my third time volunteering at Alzheimer’s Services and like my first visit here, I can not explain the feeling of calm I get when I walk through the doors. Today I am at the front desk answering incoming calls and so far I have only had two, Thank God! It’s not that I am scared to answer the phones it is I dread someone calling in because a family member has just been diagnosed with this disease.

The good thing is that there is Alzheimer’s Services to provide support for family members who are caring for loved ones with Alzheimer’s. Just having this warm and caring group of people here would make anyone feel at ease and let them know that they are not alone.

I also had the pleasure of typing blogs this morning submitted by a man who has Alzheimer’s and will be turning 90 next year!!!! As I was typing the entries I was in awe at how detailed his entries were in recalling each of his experiences. It was like I was there going through the experience with him. Memories and experiences such as these should be shared and enjoyed by others because unlike this man I have never watched turtles being born, but just by reading his blog I felt like I was there experiencing this miracle with him.

Even after my Service Learning experience is over I hope to still volunteer at Alzheimer’s Services. I know for sure I will read the blogs on a regular basis just to keep up with what’s going on, and to read future blogs by the blogger who wrote about the turtles.



Belinda
LSU Service Learning Student

It's time again for another post from our volunteer blogger!

AN OCTOBER DAY

I’m sitting outside on our patio. No TV. No radio. Very quiet and serene and I’m in the shade. We had an aluminum roof put over the cement patio. The roof is about 20’ wide and about 40’ long and it provides a lot of cover. Because it is on the north side of the house we do not get a lot of direct sunlight on the patio. A cool breeze just came by. Felt great!!!!

I’m sitting at a round table on the patio. We hung a 4’ by 8’ lattice screen at the far end of the patio. The wind goes through the openings but it also gives the effect of being enclosed.

I can hear the songs of the many birds in the trees. I do not recognize the birds I hear, but I do enjoy their chirp, chirp, chat, chat. It’s sort of peaceful out here. Not many cars on the street. School busses leave Tara High at about 2:30 each school day and I can tell time by the school busses leaving the Tara parking lot.

A big live oak tree shades the patio. It made it through the storm, but lost many branches. We took all the broken branches and piled them at our curb. Our neighbors have done likewise. Our street looks like a log jam with very heavy logs on both sides of the street. Probably like your neighborhood also. Two large trees fell on our neighbor’s house a few streets over. Looking at the house from the street, it looks as if it has three sections to it and gives you an eerie feeling. Of course, no one lives there now.

What a great loss! And our loss was minor. Thank God!

Jean is bringing lunch to me! She is so sweet and thoughtful. I love her and rely on her for so much.

Well, I see lunch coming through the gate. It’s time to quit and chat with my sweetie for awhile.

Bye for now!

This blog was written by a person diagnosed with Alzheimer’s. He’ll be 90 in ’09.

Alzheimer's Stamp

October 17, 2008 -

The Alzheimer's Awareness stamp is now available to purchase in US Postal Offices.

The Stress of Caregiving

One of our staff members found this great article on the stress of caregiving on CNN.com. Check it out.

http://www.cnn.com/2008/LIVING/wayoflife/10/09/lw.elder.care.stresses.marriage/index.html

Address to U.S. Senate Special Committee on Aging

A man with Early Onset Alzheimer's disease addresses the U.S. Senate Special Committee on Aging. Check it out.

http://aging.senate.gov/events/hr194cj.pdf

A Personal Experience

The following contribution was made by an LSU Service Learning Student.

My experience with Alzheimer’s is a personal one. I can remember as a young girl growing up, my grandfather’s aunt from New Orleans would come down for the weekend. She would be fine one minute and the next she’s dressed for church with just a hat on and nothing else. I couldn’t put a name to this behavior back then, but now I realize that this disease is prevalent in my family.

Today, my grandfather and one of his sisters are both struggling with this disease, one in more advanced stage than the other. After the death of my grandmother last year, my grandfather became really depressed, and as a result is in a nursing facility because living in a house where you shared so many memories with the person you love for 60+ years was too much for him.

Experience #1- Who knew that you had to be destitute in order to receive Federal assistance for nursing care? My family didn’t. Since his doctor recommended him to a facility it was covered under health insurance, but that came to an end. He has private health insurance and Medicare, but a nursing facility is not covered. Therefore, his savings had to be used to cover costs.

Experience#2 – Why is there a 6 month waiting list for in-home caregivers if you are not covered by Medicaid?
My mom and aunt both tried sitting with my grandfather for months, but found that it was too hard on them because he is a fairly big man who is in wheelchair. It was hard for them deciding to put him in a nursing facility, but there was no other choice since he was put on a waiting list to have someone come into the house and care for him during the day. If he would have had Medicaid it would not have been a problem, there is no waiting list.

It is amazing how if a family member wants to take care of a loved one at some point it may become too difficult for one person alone, and the option of having someone come into the home and assist is not available. Again, from my personal experience my grandfather has worked all his life to provide for his family, help in the community, and have a nest egg. Only to have his family feel that they are not able to provide for him when he needs it, he is not able to remain in the community for which he is highly looked upon, and his nest egg is gone because of nursing home expenses.

Being a service learning student at LSU and volunteering at Alzheimer’s Services has really been a positive experience. It is good to know that there are people that genuinely care about people who are suffering from Alzheimer’s disease. Alzheimer’s Services is the perfect place to start for someone who has a loved one who has been diagnosed with Alzheimer’s because they have made it simple by having resources regarding this disease readily available. My experience at Charlie’s Place was more than I would have ever expected. The staff and volunteers that were assisting the “Charlie’s” on yesterday did not treat them as though they have Alzheimer’s. Everyone was having such a good time singing, and making crafts that it felt like a “social event.” If I know of anyone who has a loved one that has been diagnosed with Alzheimer’s I will not hesitate to direct them to Alzheimer’s Services.



Belinda N. Doyle
LSU Service Learning Student

A Glimpse of Charlie's Place

First Experience of Charlie’s Place

I am a student at Louisiana State University and am currently enrolled in Social Work 3011 course. Honestly, I had no idea what the class was going to be like; I had a friend in the class who knew I needed one more elective this semester so he suggested this course to me, and I accepted. When going to class, I realized what this class was all about. It was not like any of my other classes at LSU; this course seemed much more “hands on” rather than textbooks and calculators. During my first class, I learned much about Charlie’s Place Respite Center. Basically Charlie’s Place is a “home away from home” for Alzheimer’s patients during the day. I had never heard of Charlie’s Place, nor have I ever heard of any place like it but was very interested in learning more about the program.
Today (1 October 2008) is my first visit to Charlie’s Place, and I am just finishing up a tour of the place. Earlier I referred to the place as a home away from home, and I say that with great reason. When you walk into the front door you already feel at home. You enter the living room that is set up just like an average household. It has cozy couches, comfortable rocking chairs, a table filled with magazines and books, a piano, a checkers table along with a table always occupied with a puzzle, which is amazing for people with Alzheimer's. The kitchen is filled with many dinner tables set with real china, and the whole room looks out into the beautiful backyard. The backyard is filled with gardens with all types of vegetables growing inside accompanied with a soothing fountain in the middle of the yard. It has a brand new BBQ pit with seating everywhere to enjoy the beautiful days like today. Getting my tour for the first time, I was unsure how it would turn out, but when the tour was finished I was amazed on how “homey” the place really is.

- Ryan Duncan, LSU Service Learning Student

ME.....ALZHEIMER'S? NO WAY!

We would like to announce that we have a new addition to our volunteer program. The following is the second contribution made to our blog by our volunteer. The man who wrote this blog is facing Alzheimer's disease after being diagnosed in August of 2007. He and his wife attend our education programs and are looking forward to becoming more involved with Alzheimer's Services of the Capital Area. Our volunteer will be 90 years old next year, and we are very thankful to him for offering such wonderful words of encouragement. You can look forward to many more of his blogs.

Last year, in August 2007, an internist, Dr. R and a neurologist, Dr. M confirmed the fact that I should be treated as a patient having a mild case of Alzheimer's disease. Their diagnosis floored me. I was not in agreement with their diagnosis. Members of my immediate family responded in the same manner. Very strongly. They said, "We've known you all these years and now you have Alzheimer's? Unbelievable. Look back on your years with Equitable Life Insurance Company. You started out in the office of a small Equitable agency in Nashville. Some 28 years later you retired from the Equitable office in New York City as Director of Professional Development. Think of all the advances you've made up the corporate ladder." My family said the doctors were wrong. And I agreed.


Now, more than a year later, the minds of the doubters may have changed. So has my outlook about Alzheimer's. In the morning, and sometimes during the day, I have to ask my wife, Jean, "What day is today?" So, I made a calendar showing each day of the week on a separate page to help remind me what day it is. But I forget to change it from day to day. For example, I just looked up at my home made calendar and it tells me today is Wednesday! Wrong! Today is Monday. I'll ask Jean to remind me to change the days of the week on my calendar. (Me ... Alzheimer's ... No Way).

We have a large monthly calendar in the hall near the phone. I will, or Jean will, write what commitments we have each day. But sometimes I forget to write down my commitments. For example, I go to the dentist every three months for teeth cleaning. When I leave, the receptionist hands me a card with the date for my next cleaning. Today, the phone rang and the dentist office reminded me that I have an appointment tomorrow at 1:30. Know what? I forgot to put the new appointment on my calendar three months ago. When I looked at the calendar this morning, I thought we had a free day tomorrow, but alas the phone call brought news of the dental appointment. (Me ... Alzheimer's ... No Way).


The office staff at Alzheimer's Services of the Capital Area asked me to write a summary about the September Lunch 'N Learn session. It was published on their blog. Evidently, it met with success and rave reviews because many of the Alzheimer's staff congratulated me on writing the article. Those comments made me feel great! Perhaps I can be used by Alzheimer's Services of the Capital Area to write articles for them. I'd like to do that. The articles might encourage someone who (like me) has been diagnosed with Alzheimer's disease. We are not cripples. We just have a disease that has been labeled as "Alzheimer's." Doctors say we really can not tell for sure we have Alzheimer's. The only certain way is to perform an autopsy...after death. At 89, I'm not ready for that test.

So having the label of Alzheimer's may not mean we really have it. Only an autopsy at death will tell. It will be too late for me to know, because I'll be up there above the clouds with all my family and friends who have preceded me.


So why worry? I don't know for sure that I have Alzheimer's! But the doctors think I do. So who is right? I am having a great time right now and that is all that matters. I prefer to think its old age and so does my family! Who is right? Both? Wait and see!

This blog was written by a person who has been diagnosed with a mild case of AD. He will be 90 in '09.

Charlie's Place Named National Adult Day Center of the Year

Congratulations to the staff of Alzheimer's Services of the Capital Area, past and present, and to the Board members, sponsors and volunteers for making Charlie's Place Respite Center a success! We would especially like to thank all of our clients and families for making Charlie's Place the "place" it is today! We couldn't have done any of this without you!

SPECIAL NEWS ALERT
FOR THURSDAY, SEPTEMBER 25, 2008
Alzheimer’s Services Respite Center, Charlie’s Place, Awarded National Adult Day Center of the Year from the National Adult Day Services Association (NADSA)


WHO: Alzheimer’s Services of the Capital Area & the National Adult Day Services
Association (NADSA)

WHAT: Alzheimer’s Services Respite Care Center, Charlie’s Place, awarded National
Adult Day Center of the Year from the National Adult Day Services Association

WHEN & WHERE: Award will be presented at the NADSA Conference in
San Antonio, TX, on November 7th -9th

MORE: The Adult Day Center of the Year Award was started in 2007 to honor and
recognize outstanding and innovative adult day centers in the US. Criteria for the award includes: creative programming, personalized and specialty services, exceptional programs and services, and unique or well-established community partnerships. The day center is recognized as a model on which others can learn from as “best practice”. Gloria Leblanc, who cares for a client who participates at Charlie’s Place, nominated the center for the award. The Arbor Rose Adult Day Club in Mesa, Arizona, won the award in 2007.

The Alzheimer’s Services Respite Center offers programming for individuals with
Alzheimer’s and related disorders and is designed to provide cognitive stimulation and social interaction. Activities include, but are not limited to: gardening, reminiscing, armchair exercises, music therapy and pet therapy. Based on the level of cognition, participants will enjoy field trips, leisure classes and community service projects. Participants are in the mild to moderate stages of Alzheimer’s disease and may attend one day per week. Potential participants undergo an assessment to determine their ability to participate in the program. The 2004 and 2005 Community Needs Assessment given by Alzheimer’s Services indicated that caregivers needed a temporary break from the stress of taking care of their loved one with Alzheimer’s disease.
The Charlie’s Place Respite Center is designed to temporarily relieve caregivers, particularly family members, from the pressure of the constant care needed to give their loved ones while allowing for responsible, educational care for their family member.

Alzheimer’s Services of the Capital Area serves individuals residing in the following parishes: Ascension, Assumption, East and West Baton Rouge, East and West Feliciana, Iberville, Livingston, Pointe Coupee, and St. Helena. Alzheimer’s Services of the Capital Area is a local, non-profit organization. The mission of Alzheimer’s Services of the Capital Area is to make a significant difference in the lives of all of those coping with Alzheimer's disease in our community.

September Lunch 'N Learn

Professor Wanda Spurlock's presentation at our September Lunch 'N Learn meeting was directed to caregivers. She discussed ways to manage the behavior of patients who have Alzheimer's disease. She is a Professor at Southern University School of Nursing, and has a lot of personal experience with Alzheimer's disease as a nurse. Professor Spurlock had pages of information as handouts outlining her presentation.

AD patients may experience anxiety in sleeping, wandering, and, in extreme cases hallucinations. Such behaviors can produce stress on the caregivers. Behavioral Symptoms can be diagnosed by a doctor as 1. Mild, 2. Moderate, or 3. Severe.

Caregivers can effectively communicate with the patients by using short, simple words and sentences, by speaking slowly and clearly, and by using simple step by step instructions. It may be necessary to repeat instructions and to use visual clues. Be aware of vision and hearing limitations of AD patients.

Do not argue. Do not try to convince. Do not take offense. Do not talk about the patient as though he/she is not there. Do not!

As a caregiver, be concerned about noise, glare, and background distractions such as telephones ringing, TV being loud, or conversation by others nearby. Agitation could develop because of a change in living arrangements, or by being relocated, or by having a different caregiver. When you note that your AD patient is upset or agitated, do not: raise your voice, restrain, criticize, or argue with that person.

AD patients often have trouble sleeping. To help them sleep well, avoid frequent daytime napping. When possible provide periods of exposure to natural light sources. Reduce caffeine drinks at night. Avoid heavy meals late in the day and establish regular bedtime routines.

Sundowning - the disruption in sleep pattern - creates an irregular sleep cycle often resulting in agitation. If agitation is observed, reassure the person by holding hands or a pat on the shoulder. Take a walk together and assure the patients things are going to be fine.

In conclusion - Caregivers - - - Take care! not only of the patient - but yourself as well.

This blog was written by a person who has been diagnosed with a mild case of AD. He will be 90 in '09.

September is Healthy Aging Month

It is important to pay special attention to your physical, social, mental and financial fitness. Check out the website below to read more about a positive lifestyle and healthy aging:

http://www.healthyaging.net/articlelive/articles/14/1/September-is-Healthy-Aging-Month/Page1.html

Alzheimer's Stamp

It is hoped that the new Alzheimer's stamp, available to purchase in postal offices October 17, 2008, will spread word and increase awareness of this devastating disease. To view the stamp go to:
http://www.usps.com/communications/newsroom/2008stamps/downloads/alzheimers_300dpi.jpg.

Stress & Caregiving

Caregiver Stress: Pitfalls to Avoid

Caring for an individual with Alzheimer’s disease or a related dementia can be challenging and, at times, overwhelming. It is important for the caregiver to find some time away from the care giving situation to care for themselves and avoid the pitfalls of frustration and stress.

Frustration and stress may negatively impact the caregiver’s health or cause them to be physically or mentally aggressive towards their loved one. When you are frustrated it is important to distinguish between what is and what is not within your power to change. As a caregiver of someone with dementia, you face many uncontrollable situations. There is not much you can change about the patient’s behaviors because he or she has lost the ability to distinguish between what is appropriate and non-appropriate.

Normal daily routines - dressing, bathing, and eating – become sources of deep frustration for the caregiver. Behaviors related to the diagnosis of dementia like wandering or asking questions repeatedly are also frustrating and sources of stress. Unfortunately, the disconnection from time, place, and routine cannot be repaired in the person suffering from dementia.

So what does the caregiver do to avoid the pitfalls of frustration and stress?
Learn to recognize the warning signs of frustration and stress then adjust your mood before you lose control. Some of the warning signs include shortness of breath, tightness in the throat, stomach cramps, chest pains, headache, compulsive eating, increased smoking, and lack of patience.

To control these, you can try calling a friend, praying, meditating, singing, listening to music, or taking a bath. Try experimenting with different responses to find out what
works best for you.

While it is difficult to find time to focus on yourself, it is very important that you do so to prevent frustration and burnout. Sharing your feelings with a counselor, pastor, or support group or with another caregiver in a similar situation can be a great way to release stress and get helpful advice.

For information regarding times and locations of Caregiver Network Groups, call Alzheimer's Services of the Capital Area, (225) 334-7494 or (800) 548-1211.

Emergency Numbers for the Elderly

Red Cross
Louisiana Capital Area Chapter - Baton Rouge
(225) 291-4533

Louisiana Nursing Home Association
To locate evacuated nursing home residents. To locate available nursing home placements.
(225) 927-5642
or (225) 925-1947 (Office of Emergency Preparedness)

FEMA
To register for emergency housing and temporary shelter.
1-800-621-3362

East Baton Rouge Council on Aging
Meals on Wheels and meal sites
(225) 923-8000

Capital Area Agency on Aging
Senior Rx Program (a prescription drug assistance program)
(225) 287-7414
or
1-800-280-0908

Alzheimer's Services of the Capital Area
(225) 334-7494
or
1-800-548-1211

Prepare for Hurricane Gustav

With Hurricane Gustav approaching the US coast, it is important for caregivers of Alzheimer's patients to be prepared. According to the Johnnie B. Byrd, Sr. Alzheimer's Center & Research Institute, there are several tips that caregivers should follow:

Don't forget to store or pack the following:

Bottled water
Non-perishable food
30-day supply of medications
Extra copies of prescriptions
Identification and other important documents
Medical supplies
Special nutritional items
Adult diapers
Hearing aid batteries
Flashlights and radio with extra batteries
Cooler with ice
Changes of clothing
ID bracelet
Activity games

If you evacuate: Know where you and your loved one will stay in advance. Many shelters cannot adequately care for people with special needs. Make sure your temporary accommodations can handle any supplies or equipment you must bring.
Know how you will get to your evacuation spot. Make sure you have access to a mode of transportation that can accommodate equipment such as a wheelchair, if necessary.
Make sure your loved one wears an ID bracelet that lists the contact information for your evacuation spot as well as your home.

According to the Alzheimer's Association, there are several issues
caregivers should remember:

During an evacuation:
• People with dementia are especially vulnerable to chaos and emotional trauma. They have a limited ability to understand what is happening, and they may forget what they have been told about the disaster.
• Be alert to potential reactions that may result from changes in routine, traveling or new environments.
• When appropriate, inform others (hotel or shelter staff, family members, airline attendants) that your loved one has dementia and may not understand what is happening.
• Do not leave the person alone. It only takes a few minutes to wander away and get lost.
• Changes in routine, traveling and new environments can cause:
o Agitation
o Wandering
o Increase in behavioral symptoms, including hallucinations, delusions and sleep disturbance.
• Do your best to remain calm. The person with dementia will respond to the emotional tone you set.

Tips for preventing agitation:
• Reassure the person. Hold hands or put your arm on his or her shoulder. Say things are going to be fine.
• Find outlets for anxious energy. Take a walk together or engage the person in simple tasks.
• Redirect the person’s attention if he or she becomes upset.
• Move the person to a safer or quieter place, if possible. Limit stimulation.
• Make sure the person takes medications as scheduled.
• Try to schedule regular meals and maintain a regular sleep schedule.
• Avoid elaborate or detailed explanations. Provide in-formation using concrete terms. Follow brief explanations with reassurance.
• Be prepared to provide additional assistance with all activities of daily living.
• Pay attention to cues that the person may be over-whelmed (fidgeting, pacing).
• Remind the person that he or she is in the right place.

Helpful hints during an episode of agitation:
• Approach the person from the front and use his or her name.
• Use calm, positive statements and a patient, low-pitched voice. Reassure.
• Respond to the emotions being expressed rather than the content of the words. For example, say, "You’re frightened and want to go home. It’s ok. I’m right here with you."
• Don’t argue with the person or try to correct. Instead, affirm his or her experience, reassure and try to divert attention. For example, "The noise in this shelter is frightening. Let’s see if we can find a quieter spot. Let’s look at your photo book together."
Take care of yourself
• Take care of yourself by finding a good listener to hear your thoughts and feelings about the event.
• Find moments to breathe, meditate and reflect.

Alzheimer's Services of the Capital Area wishes all of our caregivers, families and patients a safe week as Gustav approaches. Please contact our office for more information at (225) 334-7494 or (800) 548-1211.

Monitor Hurricane Gustav through The Weather Channel: http://www.weather.com/index.html/

Lunch 'n Learn Education Series

August Lunch 'n Learn

Education Series

Dates: August 20th, 27th

Time: 12:00 p.m. - 1:00
p.m.
Topic: Navigating the costs of patient care
Presenter(s): Susan Simoneaux, Senior Rx Rep., Karen
Johnson, CPA
Sponsor: Gulf South Hospice

Video Ed: Thursday, September 4, 2-3
p.m., Tuesday, September 23, 10-11 a.m.

Call Judith Scroggs, Program Coordinator, at (225) 334-7494 to register.

Blood Testing for Alzheimer's a Possiblity

With an increasing number of Alzheimer's patients as the baby boomer population ages, it is becoming more and more important to detect the disease early on. Soon it may be possible to take a sample of blood and determine if a person is genetically at risk for developing the disease.

Click the link below to read the complete story from the Los Angeles Times:

http://www.stltoday.com/stltoday/lifestyle/stories.nsf/lifestyle/healthfitness/story/51b4f01f1f27d6448625749f006df4cd?OpenDocument

No "Babytalk" for Alzheimer's Patients

A recent study shows that elderspeak, similar to "babytalk," has negative effects when communicating with Alzheimer's patients. Patients may be more resistant to care when spoken to in high-pitched voices, using basic vocabulary and extremely simple sentences. Instead, follow these healthy tips for communication:

1. It is important for caregivers to choose simple words and short sentences when communicating, but it is necessary to use calm tones of voice.
2. Always remember to avoid talking to the person like he or she is a baby or isn't present.
3. Minimize distractions and noise.
4. Call the person by name, rather than using terms of endearment such as "honey" or "sweetie."
5. Allow enough time for the person to respond. Be patient and do not interrupt.
6. Gently try to provide help with words when the person is trying to respond.
7. Use gestures to point to things you are talking about.
8. Frame your questions and instructions in a positive way.
9. Remember that this person is an adult and should be treated with respect, even as the disease progresses.

To read an article about a recent study on elderspeak, click the following ABC News link:

http://abcnews.go.com/Health/ActiveAging/Story?id=5452861&page=1

Physical Fitness

Check out CBS News information on physical fitness possibly slowing down brain shrinkage in patients with early Alzheimer's disease.

http://www.cbsnews.com/stories/2008/07/14/ap/health/main4260964.shtml?source=search_story

You can also read about this research through the American Academy of Neurology at http://www.aan.com/press/index.cfm?fuseaction=release.view&release=641.


Ready, Set, Go Exercise!!!

Ready, Set, Exercise!!!

Physical activity is not just for the young. Regular exercise is important to the health and abilities of the aging population. According to the National Institute on Aging, as older people lose the ability to do things on their own, it is not because of the aging process, but instead because they have become inactive. Exercise: A Guide From the National Institute on Aging explains what exercise and physical activity can do for a person, how to exercise safely and how to remain motivated and ready to exercise. Almost every older adult can safely perform some type of physical activity at little or no cost. Some household chores may even improve health. If you are interested in checking out a copy of Exercise: A Guide From the National Institute on Aging, contact Alzheimer's Services of the Capital Area at (225) 334-7494 or visit the office at 3772 North Blvd., Baton Rouge, Louisiana 70806.

Alzheimer's Services of the Capital Area

July Lunch 'n Learn
"Keeping Your Body Fit and Exercising with the Elderly" presented by Exercise Physiologist Elke Elzey. If you are interested in attending either the July 23rd program or the July 30th program, please contact Judith Scroggs, Program Coordinator at (225) 334-7494 for registration.

Check out the American Health Assistance
Foundation information on exercise and Alzheimer's disease at http://www.ahaf.org/alzdis/about/adhealth.htm.

Wondering About Wandering?

Care giving for an Alzheimer's patient requires attention to every aspect of the disease. Family members and caregivers of patients should not disregard the potential act of wandering. Sixty percent of Alzheimer's patients are at risk for wandering, most commonly during the middle stages of the disease. Wondering why it is so important to be aware of this common behavior?

Although the average distance a wandering patient achieves is only half of a mile, it can be life-threatening. If not located within a 24-hour period, 46% of wandering individuals may die. Nearly half of wandering Alzheimer's patients may die if not found within one day.

Why do they wander?
•Attempting to leave because they no longer recognize the physical environment, i.e. trying to go “home” to a childhood home
•Restlessness/Boredom
•Confusion about time/place
•Over-stimulation from crowds, noise, and activities
•Argument with caregiver
•Fear caused by delusions, false beliefs, or hallucinations
•An inability to communicate basic needs to caregivers
•Went outdoors and couldn't find way home
•Looking for a spouse or child because relatives no longer look familiar
•Medication side effects
•A desire to meet former obligations that no longer exist, i.e. jobs, volunteering, etc.

According to the Alzheimer's Association's Safe Return program, there are
10 Tips to Reduce Alzheimer Wandering:

1) Be prepared. There’s no way to predict who will wander or when, or how it might happen. The best safety measure is to register a loved one in the Alzheimer’s Association’s Safe Return Program before a loved one gets lost.

2) Encourage movement and exercise. Make a shared exercise, such as walking, part of your daily routine together. This will reduce anxiety and restlessness. Also, allow the person with Alzheimer’s access to a safe, enclosed area.

3) Be objective. Don’t take the person’s wandering behavior personally.

4) Be aware of hazards. Places that look safe might be dangerous for someone with Alzheimer’s disease. Look in and around your home for potential hazards - fences and gates, bodies of water, pools, dense foliage, bus stops, steep stairways, high balconies and roadways with heavy traffic - and change what you can or block access.

5) Secure the living area. Do what you can to make your home safe and secure. Place locks out of the normal line of vision - either very high or very low on doors. Use doorknobs that prevent the person with Alzheimer’s from opening the door. Other safety precautions include placing locks on gates, camouflaging doors, fencing in the patio or yard, installing electronic alarms or chimes on doors and using familiar objects, signs and nightlights to guide the person around a safe area.

6) Communicate with the person. Regularly remind and reassure the person with Alzheimer’s that you know how to find him and that he’s in the right place.

7) Identify the person. Have the person wear a Safe Return identification bracelet or necklace. Use sew-on or iron-on labels or permanent markers to mark clothing. Place identification on shoes, keys and eyeglasses and in wallets and handbags.

8) Involve the neighbors. Inform your neighbors of your loved one’s condition and keep a list of their names and phone numbers handy in case of emergency.

9) Involve the police. Some police departments will keep a photo and fingerprints of people with Alzheimer’s on file. Have the following information ready for emergencies: the person’s age, hair color, eye color, identifying marks, blood type, medical conditions, medication, dental work, jewelry and allergies.

10) Be prepared for other modes of wandering. Although most wandering takes place on foot, some people with Alzheimer’s have been known to drive hundreds of miles - sometimes in a vehicle that belongs to someone else. To prevent this problem, keep car keys out of sight or temporarily disable the car by removing its distributor cap. People with Alzheimer’s also have traveled great distances by train, airplane and public transportation.

The Safe Return program provides individuals with identification jewelry that states that the individual is memory-impaired, provided with an ID number and Safe Return number. If a wandering person is found with this jewelry, the finder can call a toll-free crisis phone line. A national database allows the Safe Return program to contact the member's contacts, making sure the person is returned home.

If you are interested in enrolling for the Safe Return program, contact Alzheimer's Services at (225) 334-7494 or 1-800-548-1211.

What to do if you find a wandering Alzheimer's patient:

1) Remember to treat the person with respect and dignity
2) Avoid restraints if possible
3) Approach from the front and introduce yourself
4) Speak slowly and calmly
5) Keep the “climate” calm and supportive
6) Ask only one question at a time
7) Keep instructions positive
8) Substitute non-verbal for verbal communication
9) Avoid Shouting
10) Keep explanation simple
11) Call Safe Return if the person has the identifiable jewelry

For more information concerning this important issue, please call Alzheimer's Services of the Capital Area.

Healthy Home Tips

At-home care for a person with Alzheimer's Disease can be difficult at times. Having a safe home environment that promotes cognitive stimulation is an ideal setting for a person with Alzheimer's disease, and it may take some worrying away from the caregiver! We found some simple suggestions that can aid with increasing the quality of life for a person with Alzheimer's and their family.


The following household tips, published on the Disabled-World website, can aid in cognitive stimulation:

• Implementing visual cues and reminders throughout the home can insure a sense of security and reduce confusion for a person with Alzheimer's Disease. Putting an enclosed display box with personal mementos outside of the person's bedroom can reduce confusion in a home hallway with multiple doors.


• Hanging clocks around the house depicting certain activites at the proper time can help a person remember daily routines.


• Replacing stale, all white design schemes with pastel colors has proven to promote a sense of calmness. Also, varying wall colors in different rooms can remind a person with Alzheimer's which activities occur in which rooms.


• Giving a person with Alzheimer's a box of photos, toys and mementos can be stimulating and reduce the person's need to find stimulants in areas that may be unsafe.

Often times, being aware of basic safety rules can make the home environment a safer place. WebMD recently published a list of safe and effective guidelines in order to provide safe and effective caregiving in the home. Help make your home a safer environment for a person with Alzheimer's disease by asking yourself the following questions:

• Are all entrances and exits are clearly marked and be accessed safely?


• Are railings and stairs outside the home properly working?


• Can the windows and doors in the house be opened and locked easily?


• Are sharp objects the in kitchen safely stored?


• Are towels, curtains and other flamable items away from the range or stove?


• Can food items be safely transported from the food to dining area?


• Is there a clear path from the bedroom to the bathroom?


• Is the phone accessible in all rooms of the house?


• Is is easy for your loved one to get in and out of the tub in the bathroom? If not, consider installing a walk-in shower. Or consider installing grab bars around the tub. Note: Towel racks are not sturdy enough to be used as grab bars.


• Are nightlights installed in the bathroom?


• Are all bathmats non-slip?


• Is there adequate lighting at the top and bottom of stairways?


• Are stairway railings sercure? Consider installing handrails on both sides of stairwell.

Click Here for a more extensive list of tips and guidelines.

Want to learn more information about Alzheimer's and dementia? Visit us online at www.brhope.com. Thanks for reading!

Alzheimer's: Is the Cure in the Genes?

Erin Mayeux, Alzheimer's Services' Program Coordinator, passed along this great video on new studies surrounding the correlation between genes and Alzheimer's disease. Here's the link to watch it: Is the Cure in the Genes?
If you have some problems with the video cutting out or stopping, select the stop or pause button and wait a few seconds (around 30 seconds to a minute) for the video to load (or buffer), then press play again.
If you find this video enlightening, please feel free to comment on this entry! Thanks for reading!

Tips for Catchin' Some ZZZs

As you may already know, Alzheimer's disease can cause severe troubles with going to and staying asleep throughout the night. As the disease progresses, these problems tend to worsen - causing many "night time" awakenings and troublesome behaviors.
The magazine care ADvantage, a publication of the Alzheimer's Foundation of America, ran a great article in the Fall of 2007 that gave some wonderful tips on how to improve the sleep patterns of a person with dementia or Alzheimer's .

Here are some of the tips the article listed that could assist caregivers with nighttime "tiffs" and get you back to your pillow:

Consistency is key. Stick to a routine for eating meals, waking and bedtime. The more person is on schedule, the more likely the person will be used to heading to bed at the same time.

Shorten nap times. Even though Alzheimer's patients tend to need some sleep during the day, make sure to limit those "snooze times" to be shorter, infrequent and earlier in the day. This will ensure that the person is tired when bedtime rolls around. Also, make sure that a bed is only used for nighttime sleeping, not napping, so that the patient associates his/her bed with longer sleeping times.

Open the shades. Let the sun come in, in the morning, so that the bright light will normalize a person's sleep rhythms, and ultimately regulate the sleep-wake cycle.

No drinks before bedtime. Make sure to restrict intakes of liquids especially drinks that contain caffeine and sugar) late in the day, so the individual will be rested for nighttime sleep. Also, make sure to limit water and other drinks before bedtime in order to reduce waking for bathroom breaks.

To read all the tips in the article, click here and go to the 9th page (or page 7 inside the publication).

Alzheimer's disease on National News

World News with Charles Gibson (of the ABC broadcasting network) featured a short spot on last night's evening news about Alzheimer's disease and the benefits of exercising.

To watch the clip, please go to: http://abcnews.go.com/Video/playerIndex?id=4476964&affil=wbrz

While searching for the clip from last night's news program, I found another interesting interview with David Hyde Pierce (you might remember him from the tv show Frasier) and Father Beck. David's father and grandfather both had Alzheimer's disease and he now volunteers with Alzheimer's Association. Check out the interview here: http://abcnews.go.com/Video/playerIndex?id=4455462&affil=wbrz

Short Films on Alzheimer's

David Shenk, author of The Forgetting, in collaboration with the Alliance for Aging Research has developed 4 very short, powerful “pocket” films to increase understanding of Alzheimer's disease. They are called "pocket" films because of their brevity and portability; and are designed to be viewed anywhere at anytime.

The topics of the four films are:
1) What is Alzheimer’s disease
2) An Urgent Epidemic
3) The Race to the Cure
4) A message for Patients and their Families

Here is the first of the 4 films, "What is Alzheimer's disease?", which gives the basics on the disease with a powerful illustration of how the brain is affected. Simply select play in the box.

Here is the link to view all the films: http://www.aboutalz.org/

Please forward this link on to your families, friends, co-workers, neighbors, etc.

Remember, knowledge is power! Please post your comments below if you thought this blog was helpful to you.

Hot off the press!

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Click here and turn to page 29 and 30 to read the article Healthcare Journal of Baton Rouge featured in their latest magazine on our new Respite Center, Charlie's Place!

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