Studies show that taking a regular, daily walk is good for physical health. Now, it appears that it may slow the progression of Alzheimer's disease and ward off mental decline, as well. The amount of walking needed to realize these benefits to the brain is more than just a stroll around the block. Researchers from the University of Pittsburgh concluded that to guard against cognitive decline, you've got to put in an average of at least five miles a week, every week, for about 10 years.
The investigators analyzed data from an ongoing 20-year study looking at the weekly walking patterns among 426 seniors. At the start of the study, 44 of the participants already had Alzheimer's and another 83 had mild cognitive impairment. In half of all cases, mild cognitive impairment eventually progresses to Alzheimer's. All other participants were cognitively healthy.
Ten years into the study, after accounting for age, gender, body-fat composition, head size and education level, the researchers found that brain volume was largest among participants who exercised the most. Further, walking five miles a week appeared to protect those with some form of cognitive impairment against further cognitive decline. Greater brain volume is a sign of general brain health and less brain cell death. The healthy participants had to walk six miles a week to protect their brain health.
After 12 months of a moderate exercise intervention, 70 percent of participants showed significant improvement in memory function. And the more the participants exercised, the greater the improvement. For more information, click here.
Also, please attend Lunch-N-Learn, September 2012. Lunch-N-Learn will run again from January to October, 2012. In September, Dr. Catrine Tudor-Locke (Associate Professor of the Department of Walking Behavior, Pennington Biomedical Research Center) will be speaking on this very topic!
Tuesday, December 13, 2011
Monday, December 5, 2011
Connections in November
As we were taking down the Faces of Alzheimer’s Photo Exhibit at the Shaw Center this week, a young LSU Student from Houston tapped me on the shoulder and asked if she could have a copy of one of the photos hanging on the wall……. “the couple dancing,” she asked. That couple is Narses and Luz Barona, married for almost 53 years, and still sharing their love and commitment with each other even though this intruder called Alzheimer’s has entered Narses’ life.
Luz gave me permission to send a copy of the photo to this young student and I mentioned in my email to her that the photo must have had a huge impact on her. She quickly replied after I emailed the photo to her, “It really was sooo touching and reminded me of something very important to me!”
These “connections” were not uncommon from the remarks from individuals who viewed the exhibit, those who left comments, and through the number of emails and phone calls shared with our organization throughout the month of November, which was National Alzheimer’s Disease Awareness Month. Impactful, to say the least, the 65 photos on the wall and the over 200 various photos in the video display truly touched people in ways indescribable to others. The “connections” were even deeper when we, as staff, mourned the loss of two individuals in the displayed photos who passed away during the month, a heartrending reality of the beginnings and endings of this devastating disease.
Our other November awareness activities had caregivers “breaking bread” and “connecting” with other caregivers at a very special cooking demonstration and luncheon with Chef John Folse and Paul Gates at White Oak Plantation. Caregivers also learned healthy eating habits at a delightful afternoon with Chef Peter Sclafani at Ruffino’s Restaurant. And, at mid-month, we all gathered at the steps of the State Capitol to light our candles in remembrance of those persons who have passed away with Alzheimer’s disease as well as honoring those who currently suffer with the disease.
Every 69 seconds someone is diagnosed with Alzheimer’s disease. I can’t count the number of times people tell me that they know a friend, or a friend’s friend, or a grandmother who had/has Alzheimer’s. The “connections” are growing with the rising statistics.
The Faces of Alzheimer’s Photo Exhibit certainly connected many people, whether through the range of expressions in the photos themselves, the stories of the individual lives, with others viewing the Exhibit, with the families in the video display, or just through one particular photo, like the one of Narses and Luz Barona dancing. An LSU student connected the photo to an important moment in her life and it made a powerful impression on her. We hope the Exhibit, and the month of activities in November, did the same for you.
-Dana Territo, Director of Services
Luz gave me permission to send a copy of the photo to this young student and I mentioned in my email to her that the photo must have had a huge impact on her. She quickly replied after I emailed the photo to her, “It really was sooo touching and reminded me of something very important to me!”
These “connections” were not uncommon from the remarks from individuals who viewed the exhibit, those who left comments, and through the number of emails and phone calls shared with our organization throughout the month of November, which was National Alzheimer’s Disease Awareness Month. Impactful, to say the least, the 65 photos on the wall and the over 200 various photos in the video display truly touched people in ways indescribable to others. The “connections” were even deeper when we, as staff, mourned the loss of two individuals in the displayed photos who passed away during the month, a heartrending reality of the beginnings and endings of this devastating disease.
Our other November awareness activities had caregivers “breaking bread” and “connecting” with other caregivers at a very special cooking demonstration and luncheon with Chef John Folse and Paul Gates at White Oak Plantation. Caregivers also learned healthy eating habits at a delightful afternoon with Chef Peter Sclafani at Ruffino’s Restaurant. And, at mid-month, we all gathered at the steps of the State Capitol to light our candles in remembrance of those persons who have passed away with Alzheimer’s disease as well as honoring those who currently suffer with the disease.
Every 69 seconds someone is diagnosed with Alzheimer’s disease. I can’t count the number of times people tell me that they know a friend, or a friend’s friend, or a grandmother who had/has Alzheimer’s. The “connections” are growing with the rising statistics.
The Faces of Alzheimer’s Photo Exhibit certainly connected many people, whether through the range of expressions in the photos themselves, the stories of the individual lives, with others viewing the Exhibit, with the families in the video display, or just through one particular photo, like the one of Narses and Luz Barona dancing. An LSU student connected the photo to an important moment in her life and it made a powerful impression on her. We hope the Exhibit, and the month of activities in November, did the same for you.
-Dana Territo, Director of Services
The Holiday Season
Thanksgiving begins the holiday season and families often gather to celebrate. For many it is when they first notice signs of memory loss or strange behaviors in mom or dad or maybe an aunt or other relative. I know it is when my siblings notice it most in my mom. There are several factors that contribute to it that we as caregivers need to be aware of to reduce the stress. These are some of the suggestions I gave my siblings as they prepared for Thanksgiving and are preparing for Christmas. Give yourself permission to keep things simple and not overdo things. Instead of cooking everything yourself perhaps you can purchase a part of the meal you traditionally made yourself such as pies or making gravy. Accept offers for help if someone wants to bring something to help out.
For my mom, having the whole family was always her favorite part of the celebration. With 8 children, spouses, grandchildren and now great-grandchildren it was a crowd. She always said, “The more the merrier.” and “Everyone is welcome at my table. “ My brother hosted Thanksgiving at his house which removed the burden off the traditional meal at my mom’s. As much as she loved it, the “crowd” is now confusing to her. When I phoned to wish them all a Happy Thanksgiving, mom didn’t know that the three little ones were not her grandchildren, but were nieces and nephews from my sister-in-laws side of the family. I suggested to my sister to sit my mom in a comfortable chair after the meal and have family visit with her one at a time and make sure they mentioned their names as they joined the conversation. It would also be helpful to her if the family used the names instead of pronouns when they were speaking of someone.
My siblings were surprised at the changes in mom’s memory. They hadn’t realized how much it had been affected until they saw her in the crowd. They hadn’t realized the crowd would cause stress and a little agitation in her. They didn’t realize how slowly she ate now. They didn’t realize she would tire so quickly and be ready to go home so soon. They didn’t realize she wouldn’t know someone 10 minutes after she met them and might need to be introduced again. All of these little things can be handled easily if you prepare for them. It reduces the stress and allows everyone to enjoy the holiday. I had recently converted old family slides to digital format and placed them on a digital photo frame so mom could enjoy them again. I suggested my sister bring the frame so mom could enjoy the pictures and share stories that she does remember that are included in the photos. The grandchildren would love to hear them and she would love telling them. It was a great addition to the day and created more wonderful memories.
For my mom, having the whole family was always her favorite part of the celebration. With 8 children, spouses, grandchildren and now great-grandchildren it was a crowd. She always said, “The more the merrier.” and “Everyone is welcome at my table. “ My brother hosted Thanksgiving at his house which removed the burden off the traditional meal at my mom’s. As much as she loved it, the “crowd” is now confusing to her. When I phoned to wish them all a Happy Thanksgiving, mom didn’t know that the three little ones were not her grandchildren, but were nieces and nephews from my sister-in-laws side of the family. I suggested to my sister to sit my mom in a comfortable chair after the meal and have family visit with her one at a time and make sure they mentioned their names as they joined the conversation. It would also be helpful to her if the family used the names instead of pronouns when they were speaking of someone.
My siblings were surprised at the changes in mom’s memory. They hadn’t realized how much it had been affected until they saw her in the crowd. They hadn’t realized the crowd would cause stress and a little agitation in her. They didn’t realize how slowly she ate now. They didn’t realize she would tire so quickly and be ready to go home so soon. They didn’t realize she wouldn’t know someone 10 minutes after she met them and might need to be introduced again. All of these little things can be handled easily if you prepare for them. It reduces the stress and allows everyone to enjoy the holiday. I had recently converted old family slides to digital format and placed them on a digital photo frame so mom could enjoy them again. I suggested my sister bring the frame so mom could enjoy the pictures and share stories that she does remember that are included in the photos. The grandchildren would love to hear them and she would love telling them. It was a great addition to the day and created more wonderful memories.
Common Eating Problems in Alzheimer's Patients
As Alzheimer’s progresses, eating problems can make the situation worse.
Consider the following:
Do dentures still fit?
What medications could be affecting appetite?
What other chronic conditions are present, such as diabetes or digestive problems?
What time of day is your loved one most alert and hungry?
Senses of taste and smell diminish and your loved one may forget to eat and/or lose the skills necessary for eating.
1. Gently remind your loved one to eat.
2. Understand that table manners and judgment diminish. Your loved one may try to eat from others’ plates or from serving bowls.
****Be alert that your loved one may eat anything in sight, including items not intended to be food.
Mealtime TIPS
1. TURN OFF radio, TV, telephone, etc. to reduce agitation.
2. Remove clutter from table.
3. Use brightly colored plates(red or blue)
4. Use placemats that do not slip.
5. Feel free to substitute:
bowls for plates
spoons for forks
6. Bendable straws and lidded cups are helpful.
7. Try placing one food at a time on the plate.
8. Cut food into bitesized pieces or introduce finger foods.
9. Try serving your loved one several small meals during the day.
****Consult with your loved one’s physician if you notice a sudden weight loss.
Consider the following:
Do dentures still fit?
What medications could be affecting appetite?
What other chronic conditions are present, such as diabetes or digestive problems?
What time of day is your loved one most alert and hungry?
Senses of taste and smell diminish and your loved one may forget to eat and/or lose the skills necessary for eating.
1. Gently remind your loved one to eat.
2. Understand that table manners and judgment diminish. Your loved one may try to eat from others’ plates or from serving bowls.
****Be alert that your loved one may eat anything in sight, including items not intended to be food.
Mealtime TIPS
1. TURN OFF radio, TV, telephone, etc. to reduce agitation.
2. Remove clutter from table.
3. Use brightly colored plates(red or blue)
4. Use placemats that do not slip.
5. Feel free to substitute:
bowls for plates
spoons for forks
6. Bendable straws and lidded cups are helpful.
7. Try placing one food at a time on the plate.
8. Cut food into bitesized pieces or introduce finger foods.
9. Try serving your loved one several small meals during the day.
****Consult with your loved one’s physician if you notice a sudden weight loss.
Tuesday, November 22, 2011
Musings from a rainy November
The 2011 Walk/Run to Remember is over and we raised $309,000 and we hosted approximately 7000 people on Saturday, October 15th. I got up that morning and met some dedicated volunteers and Alzheimer’s Services staff who showed up at the LSU “Old Front Nine” at 5:30 AM. By 8:00 we were set-up, organized and ready to greet our guests. By 1:00 PM, all the tables, chairs, tents, banners, stage, volunteers, walkers, Memory Market exhibitors and a large armadillo was packed up. How amazing to go from an empty field to thousands of people and back to an empty field in less than 6 hours.
Part of the amazing side of it is that our volunteers are so devoted and always willing to help make our walk our biggest awareness event of the year. I can’t thank you enough for all your help! Another special group is our Memory Market exhibitors. This year we had new tents for them and while I couldn’t wait to see all 32 exhibitors lined up and ready to greet our guests, I was awed by how much attention to detail went into each booth. Companies went the extra mile to bring giveaways, door prizes and set up eye-catching displays so that our caregivers and other interested individuals would have the chance to view their services and products.
Unfortunately this year we didn’t get to hear the band again, due to a problem with the generator, but these guys are also dedicated and have promised to play for the 2012 Walk which is tentatively scheduled for October 20, 2012. Club South again came out and coordinated the runners. This group is great. The food and drinks were awesome; thanks to Coca-Cola, McDonalds, Mockler, Capital City Produce, Mark Sanders and his group of friends, Home Instead for cooking the hotdogs and many other people who donated products and volunteered their time.
Our participants and donors all seemed to have a great day and we are so appreciative of your dedication to our mission. Simply saying thank you isn’t enough. We have recently revamped our Facebook and Twitter so “like” us on Facebook (Alzheimer’s Services of the Capital Area) and “follow” us on Twitter (AlzServices). I have been posting walk photos and this is a great way for everyone to stay connected with us. We want to hear your thoughts and questions. Thank you again, I am so happy to be part of this organization.
Teri BrantleyWalk Coordinator
Part of the amazing side of it is that our volunteers are so devoted and always willing to help make our walk our biggest awareness event of the year. I can’t thank you enough for all your help! Another special group is our Memory Market exhibitors. This year we had new tents for them and while I couldn’t wait to see all 32 exhibitors lined up and ready to greet our guests, I was awed by how much attention to detail went into each booth. Companies went the extra mile to bring giveaways, door prizes and set up eye-catching displays so that our caregivers and other interested individuals would have the chance to view their services and products.
Unfortunately this year we didn’t get to hear the band again, due to a problem with the generator, but these guys are also dedicated and have promised to play for the 2012 Walk which is tentatively scheduled for October 20, 2012. Club South again came out and coordinated the runners. This group is great. The food and drinks were awesome; thanks to Coca-Cola, McDonalds, Mockler, Capital City Produce, Mark Sanders and his group of friends, Home Instead for cooking the hotdogs and many other people who donated products and volunteered their time.
Our participants and donors all seemed to have a great day and we are so appreciative of your dedication to our mission. Simply saying thank you isn’t enough. We have recently revamped our Facebook and Twitter so “like” us on Facebook (Alzheimer’s Services of the Capital Area) and “follow” us on Twitter (AlzServices). I have been posting walk photos and this is a great way for everyone to stay connected with us. We want to hear your thoughts and questions. Thank you again, I am so happy to be part of this organization.
Teri BrantleyWalk Coordinator
The Holidays
It’s that special time of the year to give thanks for all the blessings that have been bestowed upon us throughout the year. I am especially thankful for having been given the opportunity to work for an organization that I am so proud of. The work that goes on at Alzheimer’s Services and Charlie’s Place is amazing. Each day our staff gives their best, it’s not just a job, it is a labor of love.
I see the relief on the caregivers faces as they drop their loved ones off each day knowing they will have 6 precious hours of relief from the “36 hour day.” I also see the joy and happiness on the clients faces after they have spent a day at Charlie’s Place. They receive stimulation and socialization and “person centered care” by not only the staff, but the volunteers who care for them.
I am very thankful that there is a place like Alzheimer’s Services of the Capital Area that can assist, and provide support and services to so many in need in our community.
November is Alzheimer’s Awareness Month, please visit us on Facebook, and share with your friends that Alzheimer’s Services of the Capital Area is a place for those affected by this disease and their caregivers to receive help and support. Why not make plans soon to bring a friend to see our special “gem” in the Greater Baton Rouge Area. You will leave inspired.
Debbie Kidder Little – Development Director
I see the relief on the caregivers faces as they drop their loved ones off each day knowing they will have 6 precious hours of relief from the “36 hour day.” I also see the joy and happiness on the clients faces after they have spent a day at Charlie’s Place. They receive stimulation and socialization and “person centered care” by not only the staff, but the volunteers who care for them.
I am very thankful that there is a place like Alzheimer’s Services of the Capital Area that can assist, and provide support and services to so many in need in our community.
November is Alzheimer’s Awareness Month, please visit us on Facebook, and share with your friends that Alzheimer’s Services of the Capital Area is a place for those affected by this disease and their caregivers to receive help and support. Why not make plans soon to bring a friend to see our special “gem” in the Greater Baton Rouge Area. You will leave inspired.
Debbie Kidder Little – Development Director
Coping with Holidays & Special Events - 10 Tips for Caregivers
1. Organize events around your routine.
*When possible, keep your regular routine. It will help lower stress for you and the person you are caring for.
*Try to keep things like sleeping, eating, bathing and dressing at the same time.
2. Plan for your best time of day.
*Plan outings and events during the time of day that is best for you and the person you are caring for.
*Plan for short visits or trips out of the home. This may be easier for you and the person you are caring for to handle.
3. Don’t try to do too much.
*Set limits so that you and the person you are caring for do not become too tired or stressed.
*Save your energy for the things that you enjoy the most.
*Keep in mind that you do not have to go to every party or event.
4. Keep gatherings small.
*When possible limit the number of people who will attend.
*At a large event, see if it is possible to have a smaller space or quiet area set aside. The person you care for may benefit from the reduced stimulation.
5. Start new traditions.
*You will not let others down by changing how special times are celebrated.
*Even if hosting a big event is something that you have always done, it is OK to pass it on to another friend or family member.
*Have people over for a special dessert instead of a full meal.
*Ask others to bring a dish, game or fun activity to share.
6. Invite others to help.
*If you are planning or hosting an event, ask for help. Give some ideas, then let friends and family members choose how they would like to help.
*Some may want to bring a dish, others may want to stay and help clean up.
*Even children can set tables, make decorations and address invitations.
7. Make gift giving easy.
*Events and holidays often involve gift giving, which can add to a caregiver’s stress.
*Catalog or online shopping is a great way to save time.
*KEEP IT SIMPLE. Give a gift card or a framed copy of a special photo.
8. Plan ahead for trips and visits away from home.
*Make sure the place you are visiting is accessible for people with wheelchairs or walkers if needed.
*Talk with the host about any foods that should be avoided.
*Bring along any needed supplies such as a change of clothes or medications.
9. Talk before the holiday or special event.
*If family members and friends do not already know you are caring for a loved one, let them know before a holiday gathering.
*Send a simple note with your holiday cards or invitations. Or take a moment to call or email.
*Tell friends and family members what daily life is like and how they can help.
10. Share your wish list.
*Holidays can be a good time to ask for help.
*Let others know what you need. Be creative. Consider asking for a few hours away from caregiving, help with home chores or even a special treat for yourself.
To find this information and other resources for older adults and caregivers, visit the Eldercare Locator at
www.eldercare.gov on the internet. Or contact us here at Alzheimer’s Services of the Capital Area, call (225)334-7494.
Ed Picard, Respite Center Coordinator
Charlie’s Place Respite Center
*When possible, keep your regular routine. It will help lower stress for you and the person you are caring for.
*Try to keep things like sleeping, eating, bathing and dressing at the same time.
2. Plan for your best time of day.
*Plan outings and events during the time of day that is best for you and the person you are caring for.
*Plan for short visits or trips out of the home. This may be easier for you and the person you are caring for to handle.
3. Don’t try to do too much.
*Set limits so that you and the person you are caring for do not become too tired or stressed.
*Save your energy for the things that you enjoy the most.
*Keep in mind that you do not have to go to every party or event.
4. Keep gatherings small.
*When possible limit the number of people who will attend.
*At a large event, see if it is possible to have a smaller space or quiet area set aside. The person you care for may benefit from the reduced stimulation.
5. Start new traditions.
*You will not let others down by changing how special times are celebrated.
*Even if hosting a big event is something that you have always done, it is OK to pass it on to another friend or family member.
*Have people over for a special dessert instead of a full meal.
*Ask others to bring a dish, game or fun activity to share.
6. Invite others to help.
*If you are planning or hosting an event, ask for help. Give some ideas, then let friends and family members choose how they would like to help.
*Some may want to bring a dish, others may want to stay and help clean up.
*Even children can set tables, make decorations and address invitations.
7. Make gift giving easy.
*Events and holidays often involve gift giving, which can add to a caregiver’s stress.
*Catalog or online shopping is a great way to save time.
*KEEP IT SIMPLE. Give a gift card or a framed copy of a special photo.
8. Plan ahead for trips and visits away from home.
*Make sure the place you are visiting is accessible for people with wheelchairs or walkers if needed.
*Talk with the host about any foods that should be avoided.
*Bring along any needed supplies such as a change of clothes or medications.
9. Talk before the holiday or special event.
*If family members and friends do not already know you are caring for a loved one, let them know before a holiday gathering.
*Send a simple note with your holiday cards or invitations. Or take a moment to call or email.
*Tell friends and family members what daily life is like and how they can help.
10. Share your wish list.
*Holidays can be a good time to ask for help.
*Let others know what you need. Be creative. Consider asking for a few hours away from caregiving, help with home chores or even a special treat for yourself.
To find this information and other resources for older adults and caregivers, visit the Eldercare Locator at
www.eldercare.gov on the internet. Or contact us here at Alzheimer’s Services of the Capital Area, call (225)334-7494.
Ed Picard, Respite Center Coordinator
Charlie’s Place Respite Center
Balancing Safety and Independent Living
If you care for a person with Alzheimer’s or similar dementia, it can be difficult to decide whether they can stay at home alone. If the person does stay by themselves for any length of time, a delicate balance is required between this person’s independence and the safety precautions that must be incorporated into living arrangements. However, before changes are made, caregivers first need to evaluate how well the individual with dementia can handle daily tasks of living. It is important to directly observe the person performing these routine activities.
Use the following questions to help determine how well the person with dementia is functioning.
These questions can also help you to identify safety concerns and/or potential hazards.
Safety Questions
(Decide “yes” or “no” for each of the following questions that pertains to your loved one.)
Having driving accidents, even minor ones?
Getting lost driving or walking?
Burning pots on the stove or forgetting to turn off the burners?
Letting strangers into the house or often locking him/herself out?
Demonstrating mood swings and suspicious paranoid behavior?
At risk of injury from falls?
Personal care Questions
Eating well-balanced meals and drinking plenty of fluids?
Dresses appropriately for the weather?
Bathes and uses the toilet when needed?
Other tasks:
Keeping up with housekeeping duties?
Shopping for, storing and preparing food correctly?
Taking medication on time with the correct dosages?
Reciting his/her current address and phone number?
This list of questions is not exhaustive, but it can be used as a great start for assessing the needs for more supervision, support, or changes in living arrangements. For more information, or to receive a checklist by mail or email, please call (225) 334-7494 or email programs@alzbr.org.
Rashida Keith, Program Coordinator
Use the following questions to help determine how well the person with dementia is functioning.
These questions can also help you to identify safety concerns and/or potential hazards.
Safety Questions
(Decide “yes” or “no” for each of the following questions that pertains to your loved one.)
Having driving accidents, even minor ones?
Getting lost driving or walking?
Burning pots on the stove or forgetting to turn off the burners?
Letting strangers into the house or often locking him/herself out?
Demonstrating mood swings and suspicious paranoid behavior?
At risk of injury from falls?
Personal care Questions
Eating well-balanced meals and drinking plenty of fluids?
Dresses appropriately for the weather?
Bathes and uses the toilet when needed?
Other tasks:
Keeping up with housekeeping duties?
Shopping for, storing and preparing food correctly?
Taking medication on time with the correct dosages?
Reciting his/her current address and phone number?
This list of questions is not exhaustive, but it can be used as a great start for assessing the needs for more supervision, support, or changes in living arrangements. For more information, or to receive a checklist by mail or email, please call (225) 334-7494 or email programs@alzbr.org.
Rashida Keith, Program Coordinator
Tuesday, September 27, 2011
Of Faces, Traces and Love
It has been an unexplainable experience accompanying photographers who are taking pictures of caregivers and their loved ones with Alzheimer’s disease. I am so appreciative to Aaron Hogan and Tate Tullier, professional photographers who have assisted us in this new project. And, photos that are being submitted for the video display are equally amazing.
“The Faces of Alzheimer’s” Exhibit is shaping up to be one of our organization’s most memorable highlighted events in recognition of National Alzheimer’s Disease Awareness Month in November. I don’t think the Shaw Center for the Arts has ever had such a display of expression, a display of stories told and untold, a display of the journey of Alzheimer’s disease. In the faces, the eyes, the movement…..there are traces of a life there, traces of things far unknown to us, traces of joy and laughter, of childlike inhibitions, traces of reality, endings and beginnings.
Beginning November 2nd through the end of the month, I invite you to visit the Shaw Center for the Arts and view this special Exhibit. If “love” could ever be photographed, it is thriving in the photo displays, the caring of spouses, mothers, daughters, fathers, sons, grandparents, grandchildren, in-laws, cousins, and/or friends.
And though we can’t be immunized against this disease called Alzheimer’s, I hope through this Exhibit that you will begin to lose the “Label” of the disease, that you can look beyond and see the true “faces,” the faces that count, the faces that can have a sustainable quality of life, and even through the reality of this devastating brain disorder, that you will come to understand and see the hope in all of them, and the hope for all of us.
Maya Angelou once wrote, “Love recognizes no barriers. It jumps hurdles, leaps fences, penetrates walls to arrive at it destination full of hope.”
Viewing the “Faces of Alzheimer’s” Exhibit, I know you will see each face, appreciate a trace of each story, and come to know and understand the root of care for that “Face of Alzheimer’s” is just love, and that love brings forth our hopes.--Dana Territo, Director of Services
“The Faces of Alzheimer’s” Exhibit is shaping up to be one of our organization’s most memorable highlighted events in recognition of National Alzheimer’s Disease Awareness Month in November. I don’t think the Shaw Center for the Arts has ever had such a display of expression, a display of stories told and untold, a display of the journey of Alzheimer’s disease. In the faces, the eyes, the movement…..there are traces of a life there, traces of things far unknown to us, traces of joy and laughter, of childlike inhibitions, traces of reality, endings and beginnings.
Beginning November 2nd through the end of the month, I invite you to visit the Shaw Center for the Arts and view this special Exhibit. If “love” could ever be photographed, it is thriving in the photo displays, the caring of spouses, mothers, daughters, fathers, sons, grandparents, grandchildren, in-laws, cousins, and/or friends.
And though we can’t be immunized against this disease called Alzheimer’s, I hope through this Exhibit that you will begin to lose the “Label” of the disease, that you can look beyond and see the true “faces,” the faces that count, the faces that can have a sustainable quality of life, and even through the reality of this devastating brain disorder, that you will come to understand and see the hope in all of them, and the hope for all of us.
Maya Angelou once wrote, “Love recognizes no barriers. It jumps hurdles, leaps fences, penetrates walls to arrive at it destination full of hope.”
Viewing the “Faces of Alzheimer’s” Exhibit, I know you will see each face, appreciate a trace of each story, and come to know and understand the root of care for that “Face of Alzheimer’s” is just love, and that love brings forth our hopes.--Dana Territo, Director of Services
Weather Monitoring with Alzheimer's Patients
Many Alzheimer’s patients had jobs related to the weather or simply have always had an interest in the weather. An easy-to-read outdoor thermometer, an indoor barometer, a rain gauge, and the newspaper and/or weather channel are the only supplies needed for monitoring the weather with the Alzheimer’s patient. Checking these items at the same time every day can become a part of the daily routine that Alzheimer’s patients find comforting. The caregiver can encourage as much discussion as is appropriate for the patient. The weather can also be a positive distraction if the patient seems to be agitated. It is important, however, to avoid discussing any weather events, past or present, that could cause fear or anxiety.
Tuesday, September 6, 2011
Caregivers & Respite Care: Everyone Needs A Break
If you are caring for a loved one with Alzheimer’s Disease, you know that caregiving is a hard job. All caregivers need a break at times. Respite care can help.
What is respite care?
*Respite care is temporary care. It gives caregivers rest & relief.
*Respite care can be at home or outside the home. It can be for a few hours or all day. It can be occasional or ongoing.
Respite care relieves burnout.
*Caregivers can become weary and tired—in other words, burned out.
*Being burned out can be bad for your health. Your eating & sleeping may suffer. You may become depressed. You may drink too much.
*Caregivers become so tired or stressed that they cannot provide enough care (neglect) or cause harm (abuse).
Respite care will help you—and the person you are caring for.
*When caregivers are rested, they are able to provide better care.
*Respite care can help you feel better. You will be protecting your health.
*Even a few hours or an occasional break can make a big difference.
Charlie’s Place Respite Center can provide you with that respite care.
Charlie’s Place offers your loved one physical activities and exercise, therapeutic activities utilizing pets, cooking, music, arts/crafts, gardening, social interaction with peers, games requiring mental participation & concentration, and a hot lunchtime meal & snacks that provide healthful nourishment & frequent hydration.
For more information or a tour, you can contact us at (225) 334-7494.
Ed Picard, Respite Center Coordinator
What is respite care?
*Respite care is temporary care. It gives caregivers rest & relief.
*Respite care can be at home or outside the home. It can be for a few hours or all day. It can be occasional or ongoing.
Respite care relieves burnout.
*Caregivers can become weary and tired—in other words, burned out.
*Being burned out can be bad for your health. Your eating & sleeping may suffer. You may become depressed. You may drink too much.
*Caregivers become so tired or stressed that they cannot provide enough care (neglect) or cause harm (abuse).
Respite care will help you—and the person you are caring for.
*When caregivers are rested, they are able to provide better care.
*Respite care can help you feel better. You will be protecting your health.
*Even a few hours or an occasional break can make a big difference.
Charlie’s Place Respite Center can provide you with that respite care.
Charlie’s Place offers your loved one physical activities and exercise, therapeutic activities utilizing pets, cooking, music, arts/crafts, gardening, social interaction with peers, games requiring mental participation & concentration, and a hot lunchtime meal & snacks that provide healthful nourishment & frequent hydration.
For more information or a tour, you can contact us at (225) 334-7494.
Ed Picard, Respite Center Coordinator
Friday, August 19, 2011
Music Therapy and Dementia by Rashida Keith
For most people, music is often an enjoyable art. This makes it a medium of therapeutic value, holding a unique place among the arts with its fun and entertainment.
Almost everyone has associations and emotions tied with music. Many people can recall a certain situation when they heard this music and how it made them feel. This is part of the reason why even those who are deeply demented are still able to respond to music.
The elderly population is one of the most common groups of people that music therapists often work with. When it comes to dementia, music therapy is one of the most successful interventions. It can serve a means of communication for those whose function of language has become challenged or almost totally lost. The elements of music, such as rhythm, pitch, and melody are all processed by many different parts of the brain, rather than just one center of the brain, as in language.
Millions of Americans suffer from memory trouble, but there is more that you can do more to help yourself or your loved one. Music in the home or on-the-go can stimulate the mind and exercise memory. It is meant to provide meaningful activity for those suffering with memory loss.
Apart from the obvious enjoyment of music, some music therapists identify four main benefits for those with dementia:
1. changes in facial expression and tension
2. increased eye contact
3. vocal activity
4. physical movement
Music therapy can be a dynamic approach in the care of people with dementia. It can help to soothe, calm, and comfort an agitated person. It can make them feel more secure and connected through smiles and laughter. Try it for yourself. See what you .
Almost everyone has associations and emotions tied with music. Many people can recall a certain situation when they heard this music and how it made them feel. This is part of the reason why even those who are deeply demented are still able to respond to music.
The elderly population is one of the most common groups of people that music therapists often work with. When it comes to dementia, music therapy is one of the most successful interventions. It can serve a means of communication for those whose function of language has become challenged or almost totally lost. The elements of music, such as rhythm, pitch, and melody are all processed by many different parts of the brain, rather than just one center of the brain, as in language.
Millions of Americans suffer from memory trouble, but there is more that you can do more to help yourself or your loved one. Music in the home or on-the-go can stimulate the mind and exercise memory. It is meant to provide meaningful activity for those suffering with memory loss.
Apart from the obvious enjoyment of music, some music therapists identify four main benefits for those with dementia:
1. changes in facial expression and tension
2. increased eye contact
3. vocal activity
4. physical movement
Music therapy can be a dynamic approach in the care of people with dementia. It can help to soothe, calm, and comfort an agitated person. It can make them feel more secure and connected through smiles and laughter. Try it for yourself. See what you .
Be a VOICE for Alzheimer's by Dana Territo, Director of Services
In the United States, there are currently 5.4 million Americans living with Alzheimer’s disease, and the disease currently affects nearly 40 percent of the population aged 85 and older. Roughly 13.2 million older Americans are projected to have Alzheimer’s disease or related dementia disorders by 2050.
The U.S. Department of Health and Human Services (HHS) is working to identify how to prevent ADRD (Alzheimer’s disease and related dementia disorders), and to address the challenges faced by people with these conditions and their caregivers. The National Institute on Aging leads the National Institutes of Health’s efforts in clinical, behavioral and social research into Alzheimer’s disease, aimed at finding ways to treat and ultimately prevent the disorder. The Centers for Disease Control and Prevention is working to implement the Healthy Brain Initiative, including assisting with monitoring the public health burden of cognitive impairment and enhancing understanding about how diverse groups perceive cognitive health. The Administration on Aging Alzheimer’s Disease Supportive Services Program is helping to create responsive, integrated, and sustainable service delivery systems for people with dementias and their caregivers.
In January, the National Alzheimer’s Project Act was signed into law after being passed unanimously through Congress. It is a law that requires the creation of a national strategic plan to address the rapidly escalating Alzheimer’s crisis and it will coordinate Alzheimer’s disease efforts across the federal government. The National Alzheimer’s Project Act (NAPA) creates an important opportunity to build upon and leverage HHS programs and other Federal efforts to help change the course of ADRD. The law calls for a National Plan for ADRD with input from a public-private Advisory Council on Alzheimer’s Research, Care and Services. The Advisory Council will make recommendations to HHS for priority actions to expand, coordinate, and condense programs in order to improve the health outcomes of people with ADRD and reduce the financial burden of these conditions on those with the diseases, their families, and society.The National Alzheimer’s Association is seeking feedback about what should be included in the national plan so that they can make recommendations to the U.S. Department of Health and Human Services. Have a VOICE in Washington D.C., by offering your opinions and sharing your challenges. The questionnaire takes just a moment and can truly make an impact in the fight against Alzheimer’s disease. You can go to http://napa.alz.org to learn more about the issue and to share your feedback.
The U.S. Department of Health and Human Services (HHS) is working to identify how to prevent ADRD (Alzheimer’s disease and related dementia disorders), and to address the challenges faced by people with these conditions and their caregivers. The National Institute on Aging leads the National Institutes of Health’s efforts in clinical, behavioral and social research into Alzheimer’s disease, aimed at finding ways to treat and ultimately prevent the disorder. The Centers for Disease Control and Prevention is working to implement the Healthy Brain Initiative, including assisting with monitoring the public health burden of cognitive impairment and enhancing understanding about how diverse groups perceive cognitive health. The Administration on Aging Alzheimer’s Disease Supportive Services Program is helping to create responsive, integrated, and sustainable service delivery systems for people with dementias and their caregivers.
In January, the National Alzheimer’s Project Act was signed into law after being passed unanimously through Congress. It is a law that requires the creation of a national strategic plan to address the rapidly escalating Alzheimer’s crisis and it will coordinate Alzheimer’s disease efforts across the federal government. The National Alzheimer’s Project Act (NAPA) creates an important opportunity to build upon and leverage HHS programs and other Federal efforts to help change the course of ADRD. The law calls for a National Plan for ADRD with input from a public-private Advisory Council on Alzheimer’s Research, Care and Services. The Advisory Council will make recommendations to HHS for priority actions to expand, coordinate, and condense programs in order to improve the health outcomes of people with ADRD and reduce the financial burden of these conditions on those with the diseases, their families, and society.The National Alzheimer’s Association is seeking feedback about what should be included in the national plan so that they can make recommendations to the U.S. Department of Health and Human Services. Have a VOICE in Washington D.C., by offering your opinions and sharing your challenges. The questionnaire takes just a moment and can truly make an impact in the fight against Alzheimer’s disease. You can go to http://napa.alz.org to learn more about the issue and to share your feedback.
Thursday, July 21, 2011
Effects of Alzheimer's on Activities
As Alzheimer’s progresses, it can affect the person’s ability to enjoy and tolerate once pleasurable activities. It is hard for us as caregivers to see such activities produce confusion, fear, or discomfort. It may become necessary to avoid over-stimulating places where there is a lot of background noise including multiple people talking at the same time, cheering, chairs scraping on floors, loud music, flashing lights, or people moving about quickly, to name a few.
Simple activities seem to be most successful. Following are a few examples:
· Trips to a nursery to look at flowers
· Walking through a small, quiet grocery store
· Visiting a farmers’ market when crowds have subsided
· Watching old movies at home
· A short walk
· Visiting a pet store
· Stopping at a local bakery
· Going to an ice cream shop
· Stopping at a local park
It is important to remember that Alzheimer’s can cause a person’s abilities and emotions to fluctuate daily. Be aware that it is OK to modify, postpone, or eliminate activities as necessary.
By Marcia Kirk
Respite Center Coordinator Assistant
Simple activities seem to be most successful. Following are a few examples:
· Trips to a nursery to look at flowers
· Walking through a small, quiet grocery store
· Visiting a farmers’ market when crowds have subsided
· Watching old movies at home
· A short walk
· Visiting a pet store
· Stopping at a local bakery
· Going to an ice cream shop
· Stopping at a local park
It is important to remember that Alzheimer’s can cause a person’s abilities and emotions to fluctuate daily. Be aware that it is OK to modify, postpone, or eliminate activities as necessary.
By Marcia Kirk
Respite Center Coordinator Assistant
Wednesday, June 29, 2011
Keeping Cool in the Summer Months
Elderly people (that is, people aged 65 years and older) are more prone to heat stress than younger people for several reasons:
- Elderly people do not adjust as well as young people to sudden changes in temperature.
- They are more likely to have a chronic medical condition that changes normal body responses to heat.
- They are more likely to take prescription medicines that impair the body's ability to regulate its temperature or that inhibit perspiration.
Heat Exhaustion
Heat exhaustion is a milder form of heat-related illness that can develop after several days of exposure to high temperatures and inadequate or unbalanced replacement of fluids.
Signs and Symptoms of Heat Exhaustion
Warning signs vary but may include the following:
- Heavy sweating
- Paleness
- Muscle Cramps
- Tiredness
- Weakness
- Dizziness
- Headache
- Nausea or vomiting
- Fainting
- Skin: may be cool and moist
- Pulse rate: fast and weak
- Breathing: fast and shallow
What You Can Do to Protect Yourself
You can follow these prevention tips to protect yourself from heat-related stress:
- Drink cool, nonalcoholic beverages. (If your doctor generally limits the amount of fluid you drink or has you on water pills, ask him how much you should drink when the weather is hot. Also, avoid extremely cold liquids because they can cause cramps.)
- Rest.
- Take a cool shower, bath, or sponge bath.
- If possible, seek an air-conditioned environment. (If you don't have air conditioning, consider visiting an air-conditioned shopping mall or public library to cool off.)
- Wear lightweight clothing.
- If possible, remain indoors in the heat of the day.
- Do not engage in strenuous activities.
Monday, June 13, 2011
My Trip - By Barbara Auten
As a long distance caregiver I struggle with many challenges, even with 7 brothers and sisters to help with my mother’s care. My mom fell in April for no apparent reason. After four days in the hospital the doctors could find no neurological reason and no real physical damage. But a four day stay in the hospital had a huge impact on my mom. She lost 25 pounds that week and was weak after lying in a bed for four days. I cried when my sister described her crawling up the stairs to her bed when they came home. It broke my heart to imagine the scene … this vibrant pillar of a woman who just 3 years ago was hiking in Northern Canada at age 84.
I knew I had to make the trip to see her and could not delay any longer. I made plans to visit for Mother’s Day and invited my daughter, Maureen, so we could all celebrate this special day together. It was a shock to see mom had shrunk. Her height had always towered mine yet now I am 2 inches taller than her. Her clothes hung on her diminished frame yet her feet were so swollen she could only wear slippers. I was afraid to hug her too hard but wanted to hold her in my arms forever. I had four short days to spend with her and help my sister who is her main caregiver.
Mom’s balance was “off” due to her weakened state and loss of weight yet she fought using a walker or cane. She insists she doesn’t need her bedroom moved to the first floor. I was relieved that she allowed me to have an additional railing installed on the stair well so she has adequate support … for now. How long will it be enough?
I anticipated Mother’s Day starting out with Mass and brunch with the family but was heartbroken to hear mom say she wouldn’t be going to church. Church was her life, the parish secretary had just requested her bio for a feature they wanted to do on her. The Bishop’s Committee had recently recognized her for 50 years of service. When I reminded her of the award she looked confused and asked, “What’s Bishop’s Committee?” So … the whole family gathered to celebrate the day and the matriarch, 5 of the 8 children and spouses, grandchildren and great-grandchildren filled the house. She was surrounded by family and for the most part could remember almost everyone. This was her element … family …she loved being surrounded by them and thrived on their presence but after an hour I could see the confusion in her face and knew it was exhausting her. We sat quietly that evening, Maureen, myself and Mom piecing together a puzzle over light conversation. She didn’t remember everyone being there that afternoon.
We saw the Neurologist Monday afternoon after dropping Maureen at the airport. Mom lost another point on her memory screening. The doctor had not received her records from the hospital. We discussed her medications and considered changing to the Aricept 23 but were told the insurance wouldn’t cover it. If we chose to pay privately it could cost several hundred dollars per month. I asked for an extension on her physical therapy as she was still weak after the hospital stay. The swelling in her feet and ankles remained a problem but isn’t going away. The compression stockings were still her best defense. The doctor renewed her prescriptions and we left hoping she wasn’t too tired to shop for shoes that would fit her feet and offer her a solid foundation. We managed to find 2 pair and even got a compression stocking aid to help her get them on. Anyone who has ever had to use them will know what a struggle this can be!
So for 2 more days we cooked and cleaned and talked. She was not happy that we put so much in piles for a garage sale but knowing she wouldn’t remember in a few minutes we kept on. It was obvious she was growing stronger since I’d arrived and she was eating better. My brother who lives with her and is developmentally challenged tries hard but sandwiches just don’t make a healthy meal twice a day, everyday. I filled the freezer with nutritional meals for two hoping they will actually reheat them for dinner. I convinced my sister that it was time to consider outside help, a sitter to relieve her of some of the burden. Even 4 children in town are not able to juggle being there for her. I’d spent nearly every waking hour with her for four and a half days, I’d filled the freezer, I’d installed the railing, I’d seen her doctor, she had new shoes, clean clothes and been bathed. I felt I’d done everything I could in that short time. We’d spent many hours just talking as I cooked or cleaned or drove the car. I hugged and kissed her good-bye trying to remain upbeat more for her sake as I walked to the car. My sister forgot something and ran back in the house giving mom time to walk to the door, to look one more time. She stood there … not with a blank stare … but a forlorn look knowing it may be the last time she saw me. It wrenched my heart … the picture of her standing in that doorway looking so frail and lost will forever be etched in my mind.
I knew I had to make the trip to see her and could not delay any longer. I made plans to visit for Mother’s Day and invited my daughter, Maureen, so we could all celebrate this special day together. It was a shock to see mom had shrunk. Her height had always towered mine yet now I am 2 inches taller than her. Her clothes hung on her diminished frame yet her feet were so swollen she could only wear slippers. I was afraid to hug her too hard but wanted to hold her in my arms forever. I had four short days to spend with her and help my sister who is her main caregiver.
Mom’s balance was “off” due to her weakened state and loss of weight yet she fought using a walker or cane. She insists she doesn’t need her bedroom moved to the first floor. I was relieved that she allowed me to have an additional railing installed on the stair well so she has adequate support … for now. How long will it be enough?
I anticipated Mother’s Day starting out with Mass and brunch with the family but was heartbroken to hear mom say she wouldn’t be going to church. Church was her life, the parish secretary had just requested her bio for a feature they wanted to do on her. The Bishop’s Committee had recently recognized her for 50 years of service. When I reminded her of the award she looked confused and asked, “What’s Bishop’s Committee?” So … the whole family gathered to celebrate the day and the matriarch, 5 of the 8 children and spouses, grandchildren and great-grandchildren filled the house. She was surrounded by family and for the most part could remember almost everyone. This was her element … family …she loved being surrounded by them and thrived on their presence but after an hour I could see the confusion in her face and knew it was exhausting her. We sat quietly that evening, Maureen, myself and Mom piecing together a puzzle over light conversation. She didn’t remember everyone being there that afternoon.
We saw the Neurologist Monday afternoon after dropping Maureen at the airport. Mom lost another point on her memory screening. The doctor had not received her records from the hospital. We discussed her medications and considered changing to the Aricept 23 but were told the insurance wouldn’t cover it. If we chose to pay privately it could cost several hundred dollars per month. I asked for an extension on her physical therapy as she was still weak after the hospital stay. The swelling in her feet and ankles remained a problem but isn’t going away. The compression stockings were still her best defense. The doctor renewed her prescriptions and we left hoping she wasn’t too tired to shop for shoes that would fit her feet and offer her a solid foundation. We managed to find 2 pair and even got a compression stocking aid to help her get them on. Anyone who has ever had to use them will know what a struggle this can be!
So for 2 more days we cooked and cleaned and talked. She was not happy that we put so much in piles for a garage sale but knowing she wouldn’t remember in a few minutes we kept on. It was obvious she was growing stronger since I’d arrived and she was eating better. My brother who lives with her and is developmentally challenged tries hard but sandwiches just don’t make a healthy meal twice a day, everyday. I filled the freezer with nutritional meals for two hoping they will actually reheat them for dinner. I convinced my sister that it was time to consider outside help, a sitter to relieve her of some of the burden. Even 4 children in town are not able to juggle being there for her. I’d spent nearly every waking hour with her for four and a half days, I’d filled the freezer, I’d installed the railing, I’d seen her doctor, she had new shoes, clean clothes and been bathed. I felt I’d done everything I could in that short time. We’d spent many hours just talking as I cooked or cleaned or drove the car. I hugged and kissed her good-bye trying to remain upbeat more for her sake as I walked to the car. My sister forgot something and ran back in the house giving mom time to walk to the door, to look one more time. She stood there … not with a blank stare … but a forlorn look knowing it may be the last time she saw me. It wrenched my heart … the picture of her standing in that doorway looking so frail and lost will forever be etched in my mind.
Tuesday, June 7, 2011
Creating Comfort with In-Home Care
It is quite normal for a family caregiver to feel some anxiety when a new person comes into the home to provide assistance, especially so because many caregivers have genuine concerns toward ensuring that the best possible care is provided to their loved one affected by dementia. When considering outside assistance, caregivers should make themselves comfortable in asking some or all of the following questions, prior to selecting an Independent or Agency Provider. This will help to decrease anxiety and promote an overall sense of comfort for everyone, especially for the individual being cared for. Below are some questions that a caregiver may consider.
Questions for an Independent Worker/Caregiver:
1. What kind of work experience do you have in caregiving?
2. What specifically makes you qualified to work with my loved one?
3. Are you comfortable dealing with my loved one’s emotional and/or mental changes?
4. Why are you interested in this type of work?
When asked upfront and respectively, these kinds of questions can create a dialogue for asking and answering all kinds of questions, while also setting an expectation for the kind of care that is sought and deserved.
Questions for an Agency:
1. What kind of background check is performed on the workers?
It's commonplace for employers to do criminal background checks on potential employees. Since trust is critical when hiring someone to help inside of your home setting, a background check can be a valuable screening tool.
2. Do you check your workers' driving record and driver's license?
If you need someone to drive your loved one, even occasionally, it is important to know what kind of driver you may be hiring. Car insurance requirements may differ from state by state. It is advisable to check with your local Department of Motor Vehicles (DMV) to see the requirements of your state. If the worker may be driving yours or your loved one’s car, check with the insurance company to find out how to include new drivers.
3. Are your workers bonded?
If someone is bonded, their work is basically insured and your loved one will be covered, in the event that the worker breaks or steals something. Bonding coverage varies, so you can ask for details. It's a level of reassurance that can make a difference; however, it is not necessarily essential to good care.
Do you provide any training for your workers?
If so, ask the agency whether training is done once or on an ongoing basis.
Are the healthcare workers your employees or independent contractors?
Some agencies function more like job referral services, linking independent workers with jobs, rather than managing their own employees. With independent contractors, you will likely be required to do more paperwork and supervision. It is a good idea to be clear about this from the very start.
What kind of supervision do you provide?
How often does the agency check in with its workers…daily or weekly? Is someone available to provide expertise or extra assistance, if needed?
How do you handle a worker's sick days, vacation days, and holidays? Will you automatically send a replacement worker?
Everyone needs breaks and time off, including yourself and those you may hire. Caregiving can be physically and emotionally demanding. Find out how agencies cover for worker absences and what's required from your end.
What's the turnover rate of your workers?
Do you think your employed caregivers enjoy their jobs? Do you offer benefits? It is hard to be certain that you will receive an honest answer, but it never hurts to ask. But, remember that one simple truth prevails: People who are happy with their work make better employees.
How do you handle conflict between a client and worker?
It helps to know how much support you'll get from an agency, should a conflict arise. Does the agency mediate conflicts, and if so, how? Is the agency flexible about changing workers, if things don't improve?
Do you have other people that I can talk to about their experiences?
It is perfectly ok to ask for several references. This is one of the best ways to get a sense of how an agency has performed over time.
Do you accept payment from insurance companies?
If your loved-one has long-term care insurance that pays for the cost of in-home care, you may want to make sure that the agency accepts this kind of payment. If not, you are likely better off using one that does.
What kind of service agreement is required?
This will help you to learn of any requirements or commitments on your end, as well as flexibility of services provided.
Will you take care of all required payroll paperwork?
A significant amount of paperwork may be involved when employing someone, covering such matters as taxes, Social Security, and disability. One benefit to hiring from an agency (and the reason it's usually more expensive than hiring independently) is that an agency will normally do this for you. However, it never hurts to double-check to see.
Are you Medicare certified?
Medicare certified agencies are eligible to be paid through Medicare, the government's health coverage for persons over 65. To become Medicare certified, an agency must meet federal standards for patient care.
Can my loved one and I interview candidates and give input on the choice?
The more control you and your loved one have over choosing an in-home health worker, the better you will feel about your choice. Agencies approach this differently, so you may need to ask.
Questions for an Independent Worker/Caregiver:
1. What kind of work experience do you have in caregiving?
2. What specifically makes you qualified to work with my loved one?
3. Are you comfortable dealing with my loved one’s emotional and/or mental changes?
4. Why are you interested in this type of work?
When asked upfront and respectively, these kinds of questions can create a dialogue for asking and answering all kinds of questions, while also setting an expectation for the kind of care that is sought and deserved.
Questions for an Agency:
1. What kind of background check is performed on the workers?
It's commonplace for employers to do criminal background checks on potential employees. Since trust is critical when hiring someone to help inside of your home setting, a background check can be a valuable screening tool.
2. Do you check your workers' driving record and driver's license?
If you need someone to drive your loved one, even occasionally, it is important to know what kind of driver you may be hiring. Car insurance requirements may differ from state by state. It is advisable to check with your local Department of Motor Vehicles (DMV) to see the requirements of your state. If the worker may be driving yours or your loved one’s car, check with the insurance company to find out how to include new drivers.
3. Are your workers bonded?
If someone is bonded, their work is basically insured and your loved one will be covered, in the event that the worker breaks or steals something. Bonding coverage varies, so you can ask for details. It's a level of reassurance that can make a difference; however, it is not necessarily essential to good care.
Do you provide any training for your workers?
If so, ask the agency whether training is done once or on an ongoing basis.
Are the healthcare workers your employees or independent contractors?
Some agencies function more like job referral services, linking independent workers with jobs, rather than managing their own employees. With independent contractors, you will likely be required to do more paperwork and supervision. It is a good idea to be clear about this from the very start.
What kind of supervision do you provide?
How often does the agency check in with its workers…daily or weekly? Is someone available to provide expertise or extra assistance, if needed?
How do you handle a worker's sick days, vacation days, and holidays? Will you automatically send a replacement worker?
Everyone needs breaks and time off, including yourself and those you may hire. Caregiving can be physically and emotionally demanding. Find out how agencies cover for worker absences and what's required from your end.
What's the turnover rate of your workers?
Do you think your employed caregivers enjoy their jobs? Do you offer benefits? It is hard to be certain that you will receive an honest answer, but it never hurts to ask. But, remember that one simple truth prevails: People who are happy with their work make better employees.
How do you handle conflict between a client and worker?
It helps to know how much support you'll get from an agency, should a conflict arise. Does the agency mediate conflicts, and if so, how? Is the agency flexible about changing workers, if things don't improve?
Do you have other people that I can talk to about their experiences?
It is perfectly ok to ask for several references. This is one of the best ways to get a sense of how an agency has performed over time.
Do you accept payment from insurance companies?
If your loved-one has long-term care insurance that pays for the cost of in-home care, you may want to make sure that the agency accepts this kind of payment. If not, you are likely better off using one that does.
What kind of service agreement is required?
This will help you to learn of any requirements or commitments on your end, as well as flexibility of services provided.
Will you take care of all required payroll paperwork?
A significant amount of paperwork may be involved when employing someone, covering such matters as taxes, Social Security, and disability. One benefit to hiring from an agency (and the reason it's usually more expensive than hiring independently) is that an agency will normally do this for you. However, it never hurts to double-check to see.
Are you Medicare certified?
Medicare certified agencies are eligible to be paid through Medicare, the government's health coverage for persons over 65. To become Medicare certified, an agency must meet federal standards for patient care.
Can my loved one and I interview candidates and give input on the choice?
The more control you and your loved one have over choosing an in-home health worker, the better you will feel about your choice. Agencies approach this differently, so you may need to ask.
Wednesday, May 25, 2011
I's All About Perception
At a neighborhood Walmart store recently, a sluggish looking middle-aged man approached me and asked for money to buy milk and bread for his family. He held out his sullied hand and showed me a few dollars and coins he had collected. Without hesitation, I reached for my purse and then gave him a few dollars. Isn’t that what it’s all about – helping thy neighbor? As I was checking out, however, I noticed the same man putting his milk and bread on an unattended counter and walking away, putting his newfound cash flow in his pockets. I watched him as he cautiously looked around him, and as he turned, his eyes met mine. He hung his head and left the store.
Such stories are numerous, and such events advance the human perception of would-be beggars and affect us in ways that make our emotions teeter from guilt to frustration and from sympathy to exasperation.
Human perception is the psychological definition of what we perceive, which despite what some people believe is not always the same as what truly is. In other words, we tend to perceive things the way we want rather than how they are really happening. Our perceptions are based on our life experiences; therefore, the perceptions of two people of the same situation are unlikely to be the same.
I was thinking of “Perception” and how most of the world looks at individuals with Alzheimer’s disease. I believe there is a kind of social stigma about the disease. The individual tends to “hide” the disease as long as he/she can. The family tends to stay in denial with others, using all kinds of creative cover-ups to mask this devastating brain disorder. And with the growing statistics of Alzheimer’s – 5.5 million people now in the U.S.-- the community and the world at-large still seem hesitant to forcibly confront this flooding river called Alzheimer’s disease.
Albeit the denial, the guilt, the discounting that this disease is going to “flood” most everyone’s lives in the very near future, the individual with Alzheimer’s is losing himself and “unlearning” everything he did in his lifetime. The individual’s memory wanes and their loved ones grapple with what once was and will never be again. And, then comes PERCEPTION. That individual CAN’T function, CAN’T have a quality of life, and CAN’T “enjoy” any activities. And last of all, the best thing for that individual is peace and calm and minimal stimulation….just keep them comfortable.
Perception. No two people perceive the same thing, yet the perception of this individual with Alzheimer’s is NOT what is truly happening. Yes, the disease is terminal. However, the disease can prevail for a very long time. Having the perception that the individual with Alzheimer’s has no quality of life, that he should be kept quiet with no activities and no purposeful stimulation, are a few perceptions society needs to change.
For those of you who watch Donald Trump’s “Apprentice” on television, country music star, John Rich, had this to say about his perception of his teammate, Lil’ Jon, a musician and rapper. "I'm very proud of what he [Lil’ Jon] accomplished. He raised a lot of money for his charity but he also successfully broke down a stereotype about guys like him -Rappers. Guys that dress like him. I know that was very important to him, not everybody that dresses like me or you do these certain things that they are stereotyped with and I know that was huge to Lil Jon and he definitely accomplished that." Lil’ Jon accepted the invitation on the show not only to raise money for his dedicated charity, but also to show viewers that Rappers are not all ignorant or on drugs. Perception.
An LSU service-learning student commented to her instructor that she had a prior mental picture of visiting the clients at Charlie’s Place and she was rather fearful. She thought the environment would be quiet, with the clients more or less “watching the grass” grow. However, she was surprised to learn how much joy and fulfillment the clients at Charlie’s Place exuberated, the atmosphere one of security [from an outside world that judges], and that people with Alzheimer’s disease can actually have enjoyment in their lives. Perception.
The stereotypical perception of Alzheimer’s blocks our awareness that the person with the disease can actually have some fruitful and productive time before the disease, like any other, progresses to end-of-life. Though we have to re-introduce ourselves (often) to the person with Alzheimer’s, this new relationship can be one of incredible gratification and lead to a whole new understanding of the disease, which can then begin to change our own PERCEPTION and that of others.
French painter, Robert Delaunay, once said, ‘Our understanding is correlative to our perception.” Once we wholly understand Alzheimer’s and that the individual with the disease can be a productive member of society, that he can have a quality of life, and once we are open and honest about the disease itself, then we can begin to change perceptions about Alzheimer’s disease, and the people diagnosed, in our community and in our world.
Dana Territo
Director of Services
Such stories are numerous, and such events advance the human perception of would-be beggars and affect us in ways that make our emotions teeter from guilt to frustration and from sympathy to exasperation.
Human perception is the psychological definition of what we perceive, which despite what some people believe is not always the same as what truly is. In other words, we tend to perceive things the way we want rather than how they are really happening. Our perceptions are based on our life experiences; therefore, the perceptions of two people of the same situation are unlikely to be the same.
I was thinking of “Perception” and how most of the world looks at individuals with Alzheimer’s disease. I believe there is a kind of social stigma about the disease. The individual tends to “hide” the disease as long as he/she can. The family tends to stay in denial with others, using all kinds of creative cover-ups to mask this devastating brain disorder. And with the growing statistics of Alzheimer’s – 5.5 million people now in the U.S.-- the community and the world at-large still seem hesitant to forcibly confront this flooding river called Alzheimer’s disease.
Albeit the denial, the guilt, the discounting that this disease is going to “flood” most everyone’s lives in the very near future, the individual with Alzheimer’s is losing himself and “unlearning” everything he did in his lifetime. The individual’s memory wanes and their loved ones grapple with what once was and will never be again. And, then comes PERCEPTION. That individual CAN’T function, CAN’T have a quality of life, and CAN’T “enjoy” any activities. And last of all, the best thing for that individual is peace and calm and minimal stimulation….just keep them comfortable.
Perception. No two people perceive the same thing, yet the perception of this individual with Alzheimer’s is NOT what is truly happening. Yes, the disease is terminal. However, the disease can prevail for a very long time. Having the perception that the individual with Alzheimer’s has no quality of life, that he should be kept quiet with no activities and no purposeful stimulation, are a few perceptions society needs to change.
For those of you who watch Donald Trump’s “Apprentice” on television, country music star, John Rich, had this to say about his perception of his teammate, Lil’ Jon, a musician and rapper. "I'm very proud of what he [Lil’ Jon] accomplished. He raised a lot of money for his charity but he also successfully broke down a stereotype about guys like him -Rappers. Guys that dress like him. I know that was very important to him, not everybody that dresses like me or you do these certain things that they are stereotyped with and I know that was huge to Lil Jon and he definitely accomplished that." Lil’ Jon accepted the invitation on the show not only to raise money for his dedicated charity, but also to show viewers that Rappers are not all ignorant or on drugs. Perception.
An LSU service-learning student commented to her instructor that she had a prior mental picture of visiting the clients at Charlie’s Place and she was rather fearful. She thought the environment would be quiet, with the clients more or less “watching the grass” grow. However, she was surprised to learn how much joy and fulfillment the clients at Charlie’s Place exuberated, the atmosphere one of security [from an outside world that judges], and that people with Alzheimer’s disease can actually have enjoyment in their lives. Perception.
The stereotypical perception of Alzheimer’s blocks our awareness that the person with the disease can actually have some fruitful and productive time before the disease, like any other, progresses to end-of-life. Though we have to re-introduce ourselves (often) to the person with Alzheimer’s, this new relationship can be one of incredible gratification and lead to a whole new understanding of the disease, which can then begin to change our own PERCEPTION and that of others.
French painter, Robert Delaunay, once said, ‘Our understanding is correlative to our perception.” Once we wholly understand Alzheimer’s and that the individual with the disease can be a productive member of society, that he can have a quality of life, and once we are open and honest about the disease itself, then we can begin to change perceptions about Alzheimer’s disease, and the people diagnosed, in our community and in our world.
Dana Territo
Director of Services
Wednesday, May 18, 2011
Using a Calendar with Alzheimer's Patients
A calendar is an excellent prompt to use with the Alzheimer’s patient. The calendar can help that person focus on an object they can touch and see that can help them register their days and help them focus as that ability to focus becomes more difficult. It can be very comforting to the patient.
A calendar reminds the patient of each day’s activities and helps them register what happened yesterday or in previous weeks. Using small store bought stickers or making simple drawings on important days helps remind the patient of family birthdays, anniversaries, appointments, etc.
A simple wall calendar or planner type calendar kept in the same place daily is recommended. It is important that the calendar be age appropriate and as plain as possible, Busy, colorful pictures or scenes are very distracting.
The calendar can prompt discussion with the caregiver and, sometimes, the patient may want to doodle or write on the calendar if he/she is capable.
By Marcia L. Kirk
Respite Center Coordinator Assistant
A calendar reminds the patient of each day’s activities and helps them register what happened yesterday or in previous weeks. Using small store bought stickers or making simple drawings on important days helps remind the patient of family birthdays, anniversaries, appointments, etc.
A simple wall calendar or planner type calendar kept in the same place daily is recommended. It is important that the calendar be age appropriate and as plain as possible, Busy, colorful pictures or scenes are very distracting.
The calendar can prompt discussion with the caregiver and, sometimes, the patient may want to doodle or write on the calendar if he/she is capable.
By Marcia L. Kirk
Respite Center Coordinator Assistant
Wednesday, May 11, 2011
Skydiving and Alzheimer's
This past weekend I joined my daughter in Texas and we spent the Mother’s Day weekend skydiving for the first time. Two thoughts became very clear to me. One, there is nothing like jumping out of an airplane and the feeling of falling. And two, as soon as I exited the plane, it hit me; I’m pretty much on my own. If I need something, nobody can be there to help me. I’m just falling through the air.
I’m lucky in that nobody in my family has been diagnosed with Alzheimer’s disease or dementia. I came to Alzheimer’s Services as a development associate just a little over a month ago. I replaced Tammi deGeneres. Each week, a different employee writes the blog and this week is my turn. Part of my job is the Walk/Run to Remember which takes place on October 15 this year. There is a link on the website to learn more about this event or start a team. Feel free to call me if you have questions. The other part of my job is public relations. I am thoroughly enjoying my employment at Alzheimer’s.
Some days I get to go over to Charlie’s Place to take photos and enjoy the activities. This is one of the perks of my position. Charlie’s Place is wonderful, but to anyone who has seen it, I don’t have to tell you that. You have seen it for yourselves. The first time I visited Charlie’s Place I was not expecting it to be so warm, inviting and happy. We host here at the office a “Cause to Remember” twice a month. We invite folks to come by, have lunch and spend about an hour learning more about us and you get to tour Charlie’s Place. I would highly recommend coming and seeing for yourself. Debbie Little, Development Director is in charge of that. She does an excellent job! Along with this informational event we do several others, like our support groups, Lunch-N-Learns, and various other educational programs. Dana, Julie and Rashida present those well.
Now back to skydiving and that feeling of being in a serious situation without a net or any back-up, Alzheimer’s caregivers don’t have to feel that way. We are here to support you and with our varied programs, I think there is something to help everyone cope with this disease. Give us a call!
I’m lucky in that nobody in my family has been diagnosed with Alzheimer’s disease or dementia. I came to Alzheimer’s Services as a development associate just a little over a month ago. I replaced Tammi deGeneres. Each week, a different employee writes the blog and this week is my turn. Part of my job is the Walk/Run to Remember which takes place on October 15 this year. There is a link on the website to learn more about this event or start a team. Feel free to call me if you have questions. The other part of my job is public relations. I am thoroughly enjoying my employment at Alzheimer’s.
Some days I get to go over to Charlie’s Place to take photos and enjoy the activities. This is one of the perks of my position. Charlie’s Place is wonderful, but to anyone who has seen it, I don’t have to tell you that. You have seen it for yourselves. The first time I visited Charlie’s Place I was not expecting it to be so warm, inviting and happy. We host here at the office a “Cause to Remember” twice a month. We invite folks to come by, have lunch and spend about an hour learning more about us and you get to tour Charlie’s Place. I would highly recommend coming and seeing for yourself. Debbie Little, Development Director is in charge of that. She does an excellent job! Along with this informational event we do several others, like our support groups, Lunch-N-Learns, and various other educational programs. Dana, Julie and Rashida present those well.
Now back to skydiving and that feeling of being in a serious situation without a net or any back-up, Alzheimer’s caregivers don’t have to feel that way. We are here to support you and with our varied programs, I think there is something to help everyone cope with this disease. Give us a call!
Tuesday, April 26, 2011
URINARY TRACT INFECTION & ALZHEIMER’S DISEASE
Urinary tract infection (UTI) is one of the most common infections. Women get urinary tract infections more often than men. Women who have had three urinary tract infections often continue having them. Four out of five such women get another UTI within 18 months of the last UTI infection.
It is important to recognize the symptoms of urinary tract infections and get it treated quickly. Infections of the urinary system (the kidneys, ureters, bladder and urethra) can be very serious - even life threatening. Caring for someone who has Alzheimer's disease or dementia poses particular problems. They may not be able to verbalize sufficiently well to tell you how they feel or what exactly is wrong. It means it is important to be aware that certain symptoms may mean a person has a urinary tract infection.
Urinary tract infection in the elderly or in people with Alzheimer's can profoundly affect, not only their health, but can result in significant behavioral changes such as increasing confusion and/or aggression. It is always worth considering changes in behavior may be due to infections like a urinary infection or constipation etc.
Causes of urinary tract infections and Alzheimer's diseaseSome people are more likely to get a urinary tract infection than others.
· In women the rate of urinary tract infections gradually increases with age. Why women are more prone to urinary infections than men is unclear.
· People with diabetes have a higher risk of a UTI because of changes in the immune system. Any disorder that suppresses the immune system raises the risk of a urinary infection.
· Any abnormality of the urinary tract that obstructs the flow of urine such as a kidney stone or enlarged prostate gland can slow the flow of urine, thus raising the risk of infection.
Signs/ Symptoms of Urinary Tract Infection
· The urine will look cloudy or milky. If blood is present then the color will be reddish color
· Urine can often smell offensive.
· Nausea and even vomiting may occur in kidney infections.
· Frequent urge to urinate but often the amount of urine passed is small.
· Fatigue (you will notice that the person with Alzheimer's may be less willing to carry out tasks or be more reluctant to eat or exercise.)
· Fever (this may mean that the infection has moved into the kidney.)
· Painful, burning sensations in the area of the bladder or urethra, during urination. The person with Alzheimer's may cry out or show distress when urinating.
· Back pain (someone with Alzheimer's may clutch or rub their back.)
· Sudden changes in behavior can be caused by infections such as UTI.
It is important to recognize the symptoms of urinary tract infections and get it treated quickly. Infections of the urinary system (the kidneys, ureters, bladder and urethra) can be very serious - even life threatening. Caring for someone who has Alzheimer's disease or dementia poses particular problems. They may not be able to verbalize sufficiently well to tell you how they feel or what exactly is wrong. It means it is important to be aware that certain symptoms may mean a person has a urinary tract infection.
Urinary tract infection in the elderly or in people with Alzheimer's can profoundly affect, not only their health, but can result in significant behavioral changes such as increasing confusion and/or aggression. It is always worth considering changes in behavior may be due to infections like a urinary infection or constipation etc.
Causes of urinary tract infections and Alzheimer's diseaseSome people are more likely to get a urinary tract infection than others.
· In women the rate of urinary tract infections gradually increases with age. Why women are more prone to urinary infections than men is unclear.
· People with diabetes have a higher risk of a UTI because of changes in the immune system. Any disorder that suppresses the immune system raises the risk of a urinary infection.
· Any abnormality of the urinary tract that obstructs the flow of urine such as a kidney stone or enlarged prostate gland can slow the flow of urine, thus raising the risk of infection.
Signs/ Symptoms of Urinary Tract Infection
· The urine will look cloudy or milky. If blood is present then the color will be reddish color
· Urine can often smell offensive.
· Nausea and even vomiting may occur in kidney infections.
· Frequent urge to urinate but often the amount of urine passed is small.
· Fatigue (you will notice that the person with Alzheimer's may be less willing to carry out tasks or be more reluctant to eat or exercise.)
· Fever (this may mean that the infection has moved into the kidney.)
· Painful, burning sensations in the area of the bladder or urethra, during urination. The person with Alzheimer's may cry out or show distress when urinating.
· Back pain (someone with Alzheimer's may clutch or rub their back.)
· Sudden changes in behavior can be caused by infections such as UTI.
Wednesday, April 20, 2011
My Perspective
My name is Cheryl Davis, I interned with Alzheimer’s Services of the Capital Area this semester. As my internship nears its end, I am reminded of the great need for a place such as Alzheimer’s Services. I was a caregiver of a grandfather with Alzheimer’s, but had no education on giving care or support. If only I had known about Alzheimer’s Services.
In the few months that I was here, so many families have been helped. There is so much information on the disease, support groups, sitter services, even Charlie’s Place! I was so encouraged by the love and hope that I saw instilled in the caregivers who came to or called our offices desperate for help. The staff is so helpful and loving. I had quite a few experiences while interning; from preparing for our annual education conference, to going with the caregivers and clients on an outing where we each painted a lovely picture. I was even able to lead a caregiver support group and we talked about caregiver stress; something I as a nurse know quite a bit about. I learned a lot.
When I was informed by Southeastern Louisiana University that my curriculum included an internship, I wasn’t sure if I could do it. I had to get used to being in one place all day, because my job has me driving from place to place. Everything went well for me and the staff was so patient and kind. I am extremely thankful for the experience, and will forever cherish my time spent with Julie and the Alzheimer’s Services staff.
Thursday, March 31, 2011
10 Warning Signs of Alzheimer’s and Dementia
How do you really know if your parent, spouse, or loved one has Alzheimer’s disease or similar dementia? If a person misplaces things or becomes confused, does this mean that the person has Alzheimer’s? Not necessarily so…
Every person, whether young or old, can experience occasions of forgetfulness. This can be the forgetting of a name, an idea, a place in conversation, amongst other things. However, when forgetfulness and confusion become so prevalent, so as to bring constant interruption to a person’s daily lifestyle functions and activities, this may be a real sign of Alzheimer’s or dementia. At this point, it is time to consult a physician. Below are a few noticeable symptoms of a person with Alzheimer’s or similar dementia:
Rashida Keith, Program Coordinator
Every person, whether young or old, can experience occasions of forgetfulness. This can be the forgetting of a name, an idea, a place in conversation, amongst other things. However, when forgetfulness and confusion become so prevalent, so as to bring constant interruption to a person’s daily lifestyle functions and activities, this may be a real sign of Alzheimer’s or dementia. At this point, it is time to consult a physician. Below are a few noticeable symptoms of a person with Alzheimer’s or similar dementia:
- Forgetfulness and memory loss
- Lack of concentration and confusion
- Losing things (Or, placing items in inappropriate places)
- Difficulty doing familiar tasks (Such as: driving, washing clothes, cleaning house, etc…)
- Language and speaking problems
- Problems with simple math
- Poor judgment
- Personality changes and mood swings
- Changes in grooming and personal hygiene
- Withdrawing from friends and family
Rashida Keith, Program Coordinator
Monday, March 21, 2011
Alzheimer’s and Intimacy
At my recent National Adult Day Services Association teleconference involving directors of Adult Day Centers, one director asked for advice on handling the issue of intimacy at the center. There was a pause in the phone conversations.
I was reminded of the story of retired Supreme Court Justice Sandra Day O’Connor and how she so eloquently dealt with the disease that led to the death of her husband, John. An Arizona TV reported in late 2007, that during her husbands stay at a Phoenix Alzheimer’s facility, he had met and fell in love with a fellow resident. He no longer had remembered his wife. His happiness [with his new friend] was a relief to Justice O’Connor and their oldest son, Scott, shared in that same report that his dad was relaxed, happy, comfortable living at the facility and he wasn’t complaining.
Peter Reed, senior director of programs at the Alzheimer’s Association in Chicago, commented in the Arizona report that the frequency of Alzheimer’s patients forming new romantic relations is hard to estimate. "But the underlying causes of this are fairly common," he said. Though patients lose their cognitive abilities and experience mood changes, "one of the things that doesn’t go away is the need for relationships."
Everyone has a need for companionship and physical intimacy and people with Alzheimer’s and/or dementia are no different. They still continue to need caring, safe relationships and touch. Their behaviors will vary in ways of giving and receiving affection as the disease affects their capacity. Just as in the case with Justice Sandra Day O’Connor and her husband, the person with Alzheimer’s may no longer recognize their spouse and/or partner, and therefore find someone else with whom they are comfortable. Families need to find ways of support and understanding and it is important to ensure that all those involved agree to the new relationship.
Individuals with Alzheimer’s oftentimes lose inhibitions and make advances to others or undress or fondle themselves. Often the sexual advances are made because that individual mistakes another for their loved one. Sometimes, however, when a behavior appears sexual, such as a female lifting her skirt or a man unzipping his pants, it could indicate other possibilities, such as the need to go to the bathroom, or that the clothing is just uncomfortable. Managing inappropriate behaviors can be gently discouraged and the behaviors can be redirected to another activity. It is important to remember to remain focused on the individual, not the behavior, and also that the behavior may be caused by discomfort, boredom, or the need to toilet. Staff members in facilities can gently draw attention away from a new relationship that might upset a spouse or partner. Additionally, providing ways for the individual with Alzheimer’s disease to have forms of touch in everyday routine is recommended. Simple activities such as brushing their hair or holding and massaging hands can offer physical intimacy and nurturing comfort to the individual. Foremost in any exchange, however, is that the person with Alzheimer’s be treated with respect and dignity.
For caregivers, spouses, partners and staff members, an awareness of their own feelings and attitudes toward sexuality, sexual expression and later-life relationships may help them to support the individuals in their care. It often takes open and honest discussion and creative thinking in the care plan to meet each individual’s needs.
Though there was a pause in the phone conversations at the aforementioned teleconference, ideas and resolutions soon spawned from healthy and well-thought-out discussions of managing the individual with Alzheimer’s and intimacy. It takes a lot of support and understanding, and most of all, knowing, and always being aware, that the individual with Alzheimer’s needs to be needed and loved.
Dana Territo, Director of Services
I was reminded of the story of retired Supreme Court Justice Sandra Day O’Connor and how she so eloquently dealt with the disease that led to the death of her husband, John. An Arizona TV reported in late 2007, that during her husbands stay at a Phoenix Alzheimer’s facility, he had met and fell in love with a fellow resident. He no longer had remembered his wife. His happiness [with his new friend] was a relief to Justice O’Connor and their oldest son, Scott, shared in that same report that his dad was relaxed, happy, comfortable living at the facility and he wasn’t complaining.
Peter Reed, senior director of programs at the Alzheimer’s Association in Chicago, commented in the Arizona report that the frequency of Alzheimer’s patients forming new romantic relations is hard to estimate. "But the underlying causes of this are fairly common," he said. Though patients lose their cognitive abilities and experience mood changes, "one of the things that doesn’t go away is the need for relationships."
Everyone has a need for companionship and physical intimacy and people with Alzheimer’s and/or dementia are no different. They still continue to need caring, safe relationships and touch. Their behaviors will vary in ways of giving and receiving affection as the disease affects their capacity. Just as in the case with Justice Sandra Day O’Connor and her husband, the person with Alzheimer’s may no longer recognize their spouse and/or partner, and therefore find someone else with whom they are comfortable. Families need to find ways of support and understanding and it is important to ensure that all those involved agree to the new relationship.
Individuals with Alzheimer’s oftentimes lose inhibitions and make advances to others or undress or fondle themselves. Often the sexual advances are made because that individual mistakes another for their loved one. Sometimes, however, when a behavior appears sexual, such as a female lifting her skirt or a man unzipping his pants, it could indicate other possibilities, such as the need to go to the bathroom, or that the clothing is just uncomfortable. Managing inappropriate behaviors can be gently discouraged and the behaviors can be redirected to another activity. It is important to remember to remain focused on the individual, not the behavior, and also that the behavior may be caused by discomfort, boredom, or the need to toilet. Staff members in facilities can gently draw attention away from a new relationship that might upset a spouse or partner. Additionally, providing ways for the individual with Alzheimer’s disease to have forms of touch in everyday routine is recommended. Simple activities such as brushing their hair or holding and massaging hands can offer physical intimacy and nurturing comfort to the individual. Foremost in any exchange, however, is that the person with Alzheimer’s be treated with respect and dignity.
For caregivers, spouses, partners and staff members, an awareness of their own feelings and attitudes toward sexuality, sexual expression and later-life relationships may help them to support the individuals in their care. It often takes open and honest discussion and creative thinking in the care plan to meet each individual’s needs.
Though there was a pause in the phone conversations at the aforementioned teleconference, ideas and resolutions soon spawned from healthy and well-thought-out discussions of managing the individual with Alzheimer’s and intimacy. It takes a lot of support and understanding, and most of all, knowing, and always being aware, that the individual with Alzheimer’s needs to be needed and loved.
Dana Territo, Director of Services
Thursday, March 17, 2011
Reading Ideas
The newspaper can provide enjoyment and encourage communication when used with persons with Alzheimer’s. Following are some parts of the newspaper that caregivers might consider:
Marcia Kirk, Respite Center Assistant
- Cartoons such as the Family Circus are one frame and show family situations to which persons can relate.
- Pictures of sporting events and local sports figures usually include action.
- “This Day in History” provides events to discuss from the person’s era.
- A local columnist, Smiley Anders, writes a column that provides lighthearted short stories about local eateries, Louisiana traditions, Louisiana foods, local landmarks, etc. , both past and present.
- The weather is very visual and the newspaper provides symbols for the forecast.
Marcia Kirk, Respite Center Assistant
Monday, March 14, 2011
2011 18th Annual Education Conference on Alzheimer’s Disease
From the Education Conference held on March 2, 2011, below a poem by Sherry Smelley and click here for Grief Inventory
I will always remember…..
I will always remember my childhood porch swing, good times with my sister, climbing trees in the bayou, dancing with my mother when I was 7, Christmas morning, the way you helped me love thunderstorms, and singing in the church Jesus Loves Me and God Loves Me.
I will always remember the aromas of grandmas cooking and the smell of fresh cut greens, the smell of roses, and newborn babies, and the smell of Christmas trees.
I will always remember my pets, my dogs, my cats and the grace they brought to me, and the feeling I had when I had to put them down.
I will always remember my closest family and friends, trips to Hawaii, Maui, Yellowstone, the Rocky Mountains, and the Smokey Mountains, the turning of fall in New England, visiting Turkey, the Niagara Falls, and the door handle at the LSU dorm.
I will always remember my grandparents and the love they showed me, my grandfather hands, her rubbing my eyebrows, my grandmother rubbing my eyes, times I spent at their farm and their house, playing jacks with my grandmother and how pretty she smelled, and how they were both beautiful inside and out.
I will always remember my father and his smile, the twinkle in his blue eyes, they way he danced on his feet, his feelings of me not to marry someone with baggage.
I will always remember my mother and her laughter and her smile, her love, the girl talks we had, and her combing my hair.
I will always remember meeting my spouse and his face and his smile, my wife’s face and eyes the day we got engaged, my wedding day and my 2nd wedding.
I will always remember the birth of my children, their love and their laughter, and what they have taught me, and the birth of my daughter and son.
I will always remember the night my grandma said goodbye, the day my son died, my mother before Alzheimer’s set in and the night she died. I will always remember you.
Thursday, February 24, 2011
Wandering
Behaviors That Often Precede Wandering
Two behaviors that typically occur before wandering are pacing and disorientation. If a person with dementia has a need, he is often unable to verbalize that need and will exhibit a sudden change in behavior instead. Check for clues that may indicate an unmet need.
Watch for Patterns of Wandering in People with Alzheimer’s
Many people with Alzheimer’s disease have a pattern to their behaviors. By watching for patterns, caregivers may be able to distract the person with specific activities at those times. Watch for triggers in addition to physical needs above, such as the time of day and environmental changes. Many people with dementia tend to become increasingly agitated in the transition between daylight and darkness, a condition known as Sundowners syndrome. A new or change in a familiar environment may result in increased agitation – it is helpful to introduce changes slowly if possible. For example, brief visits to a future home or with a new caregiver may be helpful to help prepare for the change. If the behavior seems to be related to medications, immediately notify his or her healthcare provider.
Safety Suggestions for Those Who Tend to Wander Away From Home
Fewer than 4% of people with dementia can find their way home unassisted. This presents a major safety challenge, especially during weather extremes because a person with dementia may be inadequately dressed for environmental conditions. People with Alzheimer’s may be quite lucid at times and may be able to disarm many safety devices, so always ensure that the person with dementia is properly supervised.
Ed Picard
Respite Center Coordinator
Two behaviors that typically occur before wandering are pacing and disorientation. If a person with dementia has a need, he is often unable to verbalize that need and will exhibit a sudden change in behavior instead. Check for clues that may indicate an unmet need.
- Ensure that appropriate fluids are offered at regular intervals throughout the day.
- He/she may be hungry if a mealtime is near.
- He/she may pull at clothing if needing to use the toilet.
- Check to see that clothing is suitable for the environmental temperature.
- Consider pain medication if appropriate.
- Providing a calm, predictable, and relaxed atmosphere may decrease anxiety.
- Sudden increased disorientation, or delirium, may indicate an infection or medication reaction, so notify the healthcare provider if the change in behavior persists or is cyclic.
Watch for Patterns of Wandering in People with Alzheimer’s
Many people with Alzheimer’s disease have a pattern to their behaviors. By watching for patterns, caregivers may be able to distract the person with specific activities at those times. Watch for triggers in addition to physical needs above, such as the time of day and environmental changes. Many people with dementia tend to become increasingly agitated in the transition between daylight and darkness, a condition known as Sundowners syndrome. A new or change in a familiar environment may result in increased agitation – it is helpful to introduce changes slowly if possible. For example, brief visits to a future home or with a new caregiver may be helpful to help prepare for the change. If the behavior seems to be related to medications, immediately notify his or her healthcare provider.
Safety Suggestions for Those Who Tend to Wander Away From Home
Fewer than 4% of people with dementia can find their way home unassisted. This presents a major safety challenge, especially during weather extremes because a person with dementia may be inadequately dressed for environmental conditions. People with Alzheimer’s may be quite lucid at times and may be able to disarm many safety devices, so always ensure that the person with dementia is properly supervised.
- Place a large sign on exit doors saying “Stop” or “Do Not Enter.".
- Hide doorknobs with a color-matched cloth or a curtain.
- Keep temptations, such as keys, out of sight.
- Install motion sensors or a device that will alarm if an exit door is opened.
- Provide reassurance and redirect conversations if he appears anxious or insists on “going home” or “going to work," or attempts to fulfill former responsibilities.
- Keep a recent photo and detailed physical description of the person readily available.
- Utilize programs designed to help track someone who is lost, such as MedicAlert+SafeReturn and Project Lifesaver International.
Ed Picard
Respite Center Coordinator
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