Holiday Hints for Caregivers

The holidays can be a fun time for everyone, if you set realistic expectations for yourself and your loved one. The noise and chaos of large holiday crowds can agitate and confuse an Alzheimer's patient - particularly if there are a lot of young, excitable and unpredictable children about—so it is best to try and avoid these situations, whenever possible. Consider foregoing crowded holiday parties, in favor of small, intimate gatherings with family and friends. For family and friends who may not have seen him in a while, make them aware that your loved one has good days and bad, and that there really is no way to predict which days will be good ones. Try to maintain your loved one’s normal daily schedule as much as possible during the holidays, which may mean arriving at functions late or having to leave early. If you inform your host or guests far enough in advance, they may be more willing to accommodate special requests for scheduling of festivities.

In all instances, try to minimize your loved one’s exposure to excessive noise, large crowds, and chaotic activities by making sure he has a quiet place to retire to, if he should become agitated. Along these lines, Alzheimer's patients usually fare better when they are allowed to visit with only one or two guests at a time, which enables them to better focus their attention. When your loved one’s family and friends go to visit with him, encourage them to introduce themselves with not only their names, but their relationship and other useful information. For example, they can say something like, “Hi Uncle Joe, I’m your nephew Ralph from Utah. When I was a kid, we used to have a great time fishing together with your brother Todd, my father.” This might serve to jog some memories, and could lead to an enjoyable conversation for both your loved one and the guest.

During the wintertime, it is important to make sure your loved one stays warm and comfortable.

1. Dress them in layers so you can easily add or subtract clothing as necessary. Make sure they have a warm coat, hat, gloves, and waterproof insulated boots.
2. Check for drafts -- sometimes their favorite spot to sit near the window can be quite chilly. On that token, if your home tends to be cold in the winter, make sure that at least the bathroom is warm for when your loved one needs to bathe.
3. Provide additional blankets within easy reach for the bed should your loved one become cold at night.
4. Be aware of the dangers posed from heating sources and holiday decorations. For example, in addition to supervising your loved one around Christmas trees, candles, radiators, space heaters and fireplaces, you may want to consider installing physical barriers to prevent accidental fires or injuries.
5. Make sure outdoor walkways are shoveled and free of ice - you may need to hire a service if this is too much for you to handle on your own.
6. Minimize the threat of winter colds and flu by getting flu shots and practicing good hygiene - wash your hands (and theirs) regularly or use instant hand sanitizer.
7. The winter climate can be quite dry, so make sure to moisturize your loved one’s skin with lotion and lip balm to prevent uncomfortable, itchy dry skin and chapped lips.

Julie D. Brewer, MA, Program Coordinator

Memory Boosting Herbs: What You Should Know

Studies have shown that Rosemary, Sage, Cumin, and Tumeric are herbs that have special properties for boosting memory and/or cognitive function, for those who use them.

1. Rosemary: A powerful antioxidant that protects neurotransmitters in the brain.

2. Sage: A mint herb that helps the mind to stay alert and calm, while supporting cognitive function.

3. Cumin: A potent spice that helps improve memory and speeds up recovery from amnesia.

However, Tumeric is vying for super-herb status!

4. Tumeric: This herb has been shown by research to be one of nature’s most potent healers. Tumeric supports microphage cells in clearing out plaques in the brain; discourages chronic nerve-cell inflammation; neutralizes free radicals; and binds toxic heavy metals, to prevent them from congregating in the brain. Low amounts taken over a long period of time are more effective than high dosages.

The more than 1 billion people who live in India have one of the lowest incidences of Alzheimer's in the world. Some researchers link their healthy minds to the average of 6 tablespoons of turmeric they consume, on a daily basis. Long known for its anti-inflammatory properties, turmeric protects the brain against oxidative damage that might contribute to the onset of dementia and Alzheimer's, by thwarting the development of destructive brain plaques.

Suggestion: Use a salt-shaker to sprinkle turmeric on your daily meals. In its powdery, uncooked state, it does not affect the taste of foods. I have tried it on my own meals, so I know this to be true!

For more information, visit http://www.azcentral.com/style/hfe/food/articles/2010/10/13/20101013memory-boosting-spices.html

Rashida Keith, Program Coordinator

November is Alzheimer’s Awareness Month

November is Alzheimer’s Awareness Month and across the nation there are candle lighting ceremonies and activities to increase the public’s knowledge of Alzheimer’s and its devastating effects. November is also the beginning of the holiday season where we celebrate Thanksgiving. As part of our celebration here at the office we enjoyed a Thanksgiving dinner with the clients at Charlie’s Place, our respite center. What a joy it was to spend time with the group and see their faces light up with excitement over the feast before them. As we took time to slow our office routine down a bit to share this holiday meal with them it made me long for my own large family’s dinner table. Unfortunately, living 1200 miles from my childhood home has prevented me from being there for Thanksgiving for 34 years. So each year I call and speak to family members as the phone is passed around the table; I get a few words with my mom, sisters, brothers, nieces, nephews and now great nieces and nephews.

This year I called my mom back later in the evening to spend more time with her as it gets more precious with each passing day. I fear the day she won’t know who I am when I call. It was a joy to hear she had cooked a turkey to bring to the family gathering yet I fear the day she forgets to turn the oven off. She recounted what she could remember of the celebration and could tell me the names of some of those in attendance, my brother and his family, two sisters but she couldn’t remember if their children were there, three great grandchildren, and some in-laws that she had no idea who they were. There was a pang of loss in my heart as she once prided herself in rattling off the names of all in attendance. I once listened to all 68 names of the family members at the annual reunion! She’s been aware that her memory is failing her and mentions it now and then in passing. “My memory is not so good anymore.” She will say. For the first time she mentioned that she doesn’t think so well anymore. She gets confused often. Her birthday is this week; she will turn 87 years old. She is in very good health with the exception of her Alzheimer’s. Our journey could be a long one and I will continue to savor the moments of her clear mind and accept humor and empathy in those moments of less clarity.

The holidays often allow us to see the changes in a loved one as we spend more time together during them. It is often the only time some families see each other and the symptoms of Alzheimer’s are recognized for the first time. This is another blessing we receive from the holidays as it gives us the opportunity to act on seeing those symptoms. Don’t discount them but rather ask when the last time a doctor’s visit was made, are they taking their medications regularly if they have been prescribed, perhaps it’s time to get their vision, hearing, and teeth checked. Make sure your loved one has a will and their wishes are known for their care. These are not the easiest conversations to have but are so important and will make the journey easier. With care, there may be many holiday seasons to enjoy yet!

Barbara W. Auten, Executive Director

Stop and Think About Thanksgiving

One of the local radio stations has already begun playing Christmas music.
The retail stores are already adorned with Christmas trees and holiday décor.
Internet postings are advertising pre-“Black Friday” sales.
Where ARE you THANKSGIVING?

For me, personally, overriding Thanksgiving seem irreverent and disrespectful of a holiday where we are supposed to stop and truly reflect on our blessings and thankfulness this past year. It seems distracting to do this when Christmas rears its head so early on.

In 1620, a group of people, calling themselves Pilgrims, set sail for the New World [America], seeking religious freedom and a better life for their children. Of the 110 Pilgrims and crew who left England, less than 50 survived that first devastating winter in Plymouth. Then, an Abnaki Indian, named Squanto, wandered into their camp and “Welcomed” them. He was a godsend to them, teaching them how to tap the maple trees for sap, showing them which plants were poisonous and which had medicinal powers, and moreover, teaching them how to plant Indian corn and other crops. The results were gained in an abundant harvest for the Pilgrims, with enough food to put away for the winter and they found themselves very thankful for not only the food, but also their wilderness homes and the peace with their Indian neighbors. They wanted to stop and celebrate and offer thanks for their bounty. This “first” Thanksgiving included the Pilgrims and their Indian friend, Squanto, who brought 90 members of his tribe. The celebration lasted three days.

So, why the History lesson? Reading about the long and arduous journey of the Pilgrims brings to mind the long and arduous journey of the Alzheimer’s caregiver. And, Alzheimer’s Services is a little like “Squanto,” assisting families in need, offering an “abundant crop” of educational events and resources for the caregiver and their loved one to have a “bountiful harvest” of hope and blessings to put away whenever they need them.

For the caregiver, however, who might be questioning, “What do I have to be thankful for?”….there’s no easy answer. There can be simple observations of thankfulness, however. Perhaps, like us, the caregiver can overlook the stress of caregiving and focus on what a privilege it is to “serve” their loved one, that special someone in need. There is also that blessing of being present with their loved one, that connection of a favorite memory, a smile, a joyful moment in an otherwise harried day. Plus, hosts of support groups, of which we offer many, are a source of comfort and camaraderie among new-found friends, allowing the caregiver to unload their emotions and frustrations. And, finally, there’s a growing awareness of Alzheimer’s disease, unlike a just a decade ago, which affords us all more information and research and more ways to legitimize a voice in our government for benefits and resources. That’s a pretty good bounty!

Let’s not shirk Thanksgiving. Our organization is so thankful and might I say, privileged, to serve our ten-parish area….individuals who come to us after that first diagnosis, those who are at a loss of how to manage the care of their loved one, and those who need to learn more about the disease and its process. We are blessed with wonderful families, many of whom have become our extended families and these relationships are meaningful and so very important to us. The lives and the stories that have passed through our doors are and have been extraordinary and definitely should be on a Hallmark card, “Things I am Thankful for!” The Pilgrims had a three-day Thanksgiving celebration, but we celebrate and honor You, the Caregiver, and You, the individual with Alzheimer’s disease, all-year long. That’s what makes us so blessed to serve each and every one of you.

Christmas is a beautiful and magical season. But, Thanksgiving deserves our attention, too. In 1863, President Abraham Lincoln appointed a national day of thanksgiving, and years later it was designated as the fourth Thursday of each November. Let’s put Christmas aside for just a little while as that Fourth Thursday is upon us. The music and the shopping and the decorating can wait. Our gratitude is always forefront; the abundance and bounty of who we serve, what we do, and the relationships that sustain us are well worth recognizing this Holiday first.

Happy Thanksgiving!

Dana Territo, Director of Services

Reflection

As I approach my 2nd year anniversary of joining the staff at Alzheimer’s Services I am proud to be able to say that I work for an organization that provides so many wonderful programs and services for caregivers and their loved ones who not only suffer from Alzheimer’s disease but any memory related dementia. Each day, I see the smiles of caregivers who drop their loved ones off at Charlie’s Place knowing they will receive a 5 hour break from caring for their loved one affected by Alzheimer’s disease and that their loved ones are being left in loving, caring, compassionate hands. Sometimes I can hear the laughter and joy from support group members who meet monthly to share their personal stories. I can’t hear the soft cries, or the frustration, but I know it’s being shared because they are not alone as they go through their journey at Alzheimer’s Services.

6 years ago, I needed help in coping and caring for my parent. I was a caregiver for my Father, a prominent, dedicated, strong, man, who gave 45 years of his life as a public servant to our community. A policeman for all of his adult life, he became Police Chief of Baton Rouge and finally retired in 1977. Dad suffered from late stage dementia and Parkinson’s disease until his death in 2005 at age 82. His wife of 60 years, my Mom, preceeded him in death and I became his full time caregiver until he passed away. The strong, dedicated, public servant - my parent, became my child. The roles had reversed. It was my turn to be strong, dedicated, and compassionate …a caregiver. It’s an all too common story, one told many times by caregivers who come to Alzheimer’s Services for services and programs, education about Alzheimer’s disease or who just come to open their hearts to a friendly face who knows what they are going through.

My experience as a fulltime caregiver has given me compassion for the caregivers who give so much, patience with those suffering from this disease and passion for this organization. I know first-hand what it feels like to be worried and exhausted from caring for a parent with dementia, sandwiched with parenting duties of children, combined with the duties of working a full time job. Fatigue from the 36 hour day…seems like it will never end. Sadly, eventually it does.

Now, I look back and think that I would have been a much better a caregiver if I would have been able to take advantage of all the resources, services, support groups that I see so many families who come to Alzheimer’s Services receive. I didn’t know Alzheimer’s Services existed.

It is my personal mission to create awareness and funds for an organization that strives to give so much to so many in need. It is my personal mission to invite everyone who has ever been a caregiver of a loved one with a memory related disorder or know of someone who is coping with Alzheimer’s disease to become an Ambassador for Alzheimer’ Services. I, WE, THEY need YOU!

Won’t you join us in fulfilling the mission of Alzheimer’s Services …to make a significant difference in the lives of those coping with Alzheimer’s disease. Please spread the word… Be an Ambassador… there is hope and Alzheimer’s Services can help you cope with this debilitating and exhausting disease. For more information please call 334-7494 or email Debbie at alzdev@alzbr.org.

Debbie Little, Development Director

Memory Boxes

Memory Boxes are a great way to reminisce with your love one with dementia or Alzheimer’s. The boxes are very easy to make. Here is what you will need.

Supplies:
*small cardboard box
*decorations (box and stickers)
*strips of paper

Directions:
*Place a small picture or sticker on each strip of paper and jot down a sentence about that sticker or picture.

Example: Place a sticker of a dog on one of the strips of paper and jot down a sentence. Such as: Remember our pet dog “Rover” and how cute he was?
*Continue same sequence, adding more memories to each strip of paper.
*Place other unique memories, such as a favorite piece of candy.

Other Examples:
*sticker of a “Hershey kiss candy”—Remember how much you love chocolate?
*sticker of a “fishing pole”—Remember the big fish you caught when we went fishing at Toledo Bend?
*sticker of a “baseball”—Remember when you played baseball for the Baton Rouge Sluggers?
*sticker of a “flag”—Remember when you were in the Navy?

*Finally, place all of the strips in the box and take the box out whenever you want to reminisce.

You can make one of these at our Annual Maximize Your Memory Day to be held on Friday, November 19th, 9:00 a.m.-2:30 p.m. at the Pennington Biomedical Center.

Ed Picard, Q.D.C.P.
Charlie's Place Respite Center Coordinator

Helping family with Alzheimer's

When I first started working at Alzheimer’s Services of the Capital Area I was really unsure of how I felt about the disease and dementia because I had only known one person ever affected by it. It was through working with support groups and helpline that I started to really think about the things that have affected my family in the past and unfortunately still affects many other families in our area. My grandmother passed away several years ago from the disease, but at the time I did not realize how it affected me because I did not live close to her. It was soon after starting to work here that I came to terms with the things my family had to deal with. I knew that my grandmother was not well, but had I known the things I do now about support groups, and Charlie’s place, and all the resources that Alzheimer’s Services offers I wonder if things would have been different. In the support groups like Sharing the Journey I have learned the hardships each caregiver struggles with in dealing with this disease and it hit me how much just being involved has helped me to deal with the passing of my grandmother. At the time I did not realize how her death affected me, but looking at where I am now I can say that if there is a time and place where I needed to be, then this is it. I feel as though through meeting with caregivers and family members affected by the disease, and hearing of their great efforts to cope has given me strength to feel as though I am making a difference in their lives. Although I have only worked at Alzheimer’s Services for a few short months, it is through my work here with the support groups and events, and sharing with my family the progress I have made that I have really been able to come to terms with my grandmother’s death. Although I did not fully understand it then, I now feel as though just being able to give information and be a resource to those in need is making a profound difference in both of our lives.

Julie Fandal
Alzheimer's Services Intern

Chariots of Fire – my Running Desire!

By Keith John Paul Horcasitas
Sunday, October 17, 2010
Rated "G" by the Author.

A Short Story about participating and volunteering at the Annual Alzheimer's Walk/Run to Remember, Forming a Work Team for the Walk/Run, Winning in the Age Category, Benefits from Getting Older, Annual Kiwanis Pancake Festival

Last weekend, we had fun at the annual Alzheimer's Walk/Run to Remember. The weather was beautiful and so many people from around the community, from all walks of life, came together for a great cause. I was blessed to be able to organize a team at work, and our motto was: "Catholic Charities Gives Back – Taking Steps to Fight Alzheimer's Disease.”

While I have never had any direct family member that I am aware of who has been touched with that specific disease, my own father was diagnosed with vascular dementia in his latter years after he had some mini-strokes. And we were able to take advantage of the “Respite Program” to help mom and dad before they died in 2006 per the Alzheimer's Services that helped us to manage some of the sitter and other costs that were not covered by insurance.

Earlier in my professional career, when I used to help facilitate Alzheimer's Support Groups, I was able to write a Forward to Ponchatoula native Kim Howes Zabbia's poignant book, Painted Diaries: A Mother and Daughter's Experience Through Alzheimer's Disease: "Who but a caregiver can understand how Alzheimer's is truly a family disease? Who but an artist can plunge into the mysteries of the mind? Who but a journalist can articulate Alzheimer's losses so vividly? Who but a courageous, witty person could take less than a full deck of life's cards and play the game so passionately?"

I've been participating in the annual Memory 5K Run for about 12 years and have been able to volunteer for about 5 years with the 6 AM crew that gets the grounds on LSU campus ready for the 9 AM activities. I can always depend upon Carolyn, one of the Alzheimer's Services Volunteer Coordinators, to make sure my calendar is marked early enough in the year to make it to this great event. It is always great to see the many friends in the aging network whom I know who work at the booths in the “Memory Market” which I help set up with many other volunteers.

It used to happen that the Alzheimer's Memory Walk/Run would fall on the same day as the Downtown Kiwanis Club's Annual Pancake Festival, which benefits many other great social service organizations in town. I used to be a member of that Kiwanis Club and would usually do the Memory Run first and then head to the LSU PMAC where the Pancake Festival is always held. So after jogging off some weight and having a beer with jambalya from the Alzheimer's Run, I would head over to help make Pancakes with my fellow Kiwanians. Nowadays, it seems that the events are on different days, so it is not so hectic when I still go to help at the PMAC. I plan to be there for this year's gathering on Saturday, October 23, 2010!

My goal for a running time in this year's Alzheimer's 5K was 25 minutes. In my 20's and 30's, I used to do these races in about 20 – 21 minutes. In New Orleans, when I first started competition running in the late 1970's, I mostly ran 10Ks. Some of my fondest runs were the Crescent City Classic, as I ran in the first one and did it in around 38 minutes – that was when I was really serious about running. But as I have joined the AARP geezer age group, my running has mainly been for maintenance fitness and not for reducing times. So I approached this Memory Run with realistic ideas of just having fun with my co-workers and seeing other professional contacts and friends.

So after another busy morning of putting up tents, tables, chairs and all kinds of supplies with other volunteers – with a doughnut or two and Community Coffee to boot, I looked forward to meeting with my Catholic Charities co-workers and encouraging one another for either the walk or the run that was to be coming up. And, of course, I had to get in a little bantering and teasing with Brendan and other workers who I would maybe “leave in the dust!”

I started the race towards the front of the group, so as to not get stuck behind some “slow pokes” who can sometimes cause falls as people are trying to weave through others. After we passed the first mile, Matthew caught up with me and eventually passed me up. Brendan got the last laugh as he also flew past me at around the 1 ½ mile part of the 3.2 mile race. Since I sometimes get stomach cramps from drinking water at the mile points, I just took quick swigs and poured the rest on my head as a great cooling down treat. As I closed in to the end, I thought that I would be close to 25 minutes but was bummed out when I found out that my finished time was 26 minutes even. So after turning in my race finish tag with my time, I joined Matthew and Brendan in cheering our other team members as they crossed the finish line. It was fun! So we headed over to get some food and drinks and then to the Memory Market booths for goodies. As we were getting close to the Main Stage and the Top 3 Winners were being announced, I told Dana that I may just get in 3rd Place for the 50 – 54 age guys.

As Alecia proceeded to announce the Top 3 Winners from the younger age categories on up, I was hopeful, as I had been able to come in 3rd a few years earlier in the same race. After she announced another person's name for 3rd Place in my age category, I just figured that some of those other gray haired/bearded guys that had passed me up must have done better than me. Next thing you know, as I'm talking with Dana, Alecia announced that “Keith Horcasitas is the 1st Place Winner in the 50 -54 age group!” I high tailed it up to the stage and proudly wore my medal the rest of the day and on Monday when we all returned to work.

It happened that as I had been cheering on our other co-workers at the finish line, I met someone with the Senior Olympics, who was recognizing some members also in the race. While the running activities for the Senior Olympics have already occurred this month, I did get an application for other events to be held this month. Now that I'm 50 +, there are some benefits that seem to accrue with getting older – especially as more folks drop out of competition running and I have more of a chance to win! Watch out Senior Olympics – here I come!

On Long Distance Care of a Loved One

There are 1100 miles between my front door and my mother’s home. The home I grew up in and she has known for nearly 60 years. She raised 8 children in that house and wants to live there until she dies. At age 86, she may get her wish. I hope she gets her wish and does not need institutional care as her Alzheimer’s disease is becoming more evident each time I speak to her. Being so far away and not being able to help in her daily needs is frustrating for me. I have four siblings living near her, one a developmentally challenged brother who actually does still live with her. Unfortunately his challenges make it difficult for him to assist in her care. He does his best. My siblings do what they can but not nearly everything that is necessary. Last Sunday my mom walked a mile to church and a mile home. For the first time she said that the walk was getting a little long. Somehow I can’t understand why she has to walk at all with so many relatives that drive nearby.

I call each morning to remind mom to take her medication. The daily pill box has long since stopped being a reminder; regardless that it is placed where she eats every meal. Buying a pill dispenser with an alarm is my next purchase. My brother tries to intercept the mail to discard the many daily pleas for donations that she receives. She will send each one a check for $5 or $10 but doesn’t pay her utility bill. She asks me to send her a list of the siblings, spouses and grandchildren’s names. She has spent the day with my oldest sister and her husband but can’t remember a thing they said to share with me. She still tries to do all the laundry which requires going down stairs to the basement and carrying a basket of laundry up. The only bathroom is located on the second floor so she climbs those stairs 6 or 7 times a day. I have managed to have grab bars and additional railings placed on all the stairwells for extra support. I have tried to coordinate a care program for her with all 8 siblings working together where we plan trips to visit to relieve some responsibility of those near her, pay bills with online banking, and finalize her legal issues and estate plans. The effort is exhausting as things move so slowly or someone drops the ball and doesn’t follow through … and my mom has 8 children with 6 spouses and 12 grandchildren. I can’t imagine what an only child or smaller families do to cope with the demands of caregiving. My generation didn’t have large families and the average is 2.3 children per family. For the first time in our nation’s history the birth rate did not exceed the death rate this year. Families are more mobile. For us in Louisiana, many families experienced relocations due to Hurricanes Katrina and Rita and no longer live near each other. As we see the expected rise in those affected by Alzheimer’s disease we will also see more long distance care situations and many frustrated caregivers. I’m grateful for the knowledge I have as an employee of Alzheimer’s Services and yet I have great challenges. I have great empathy for those we serve and hope we can help with those challenges.

Barbara Auten
Executive Director
Alzheimer's Services of the Capital Area

Support Groups

When my father was diagnosed with Alzheimer’s, my mind filled with questions and apprehension. At that time, two friends’ parents were also diagnosed with Alzheimer’s.

friends and I began monthly meetings at my home where we shared information and experiences while caring for our parents. At those meetings, we cried and we laughed together. Eventually, our group grew to include eight daughters of parents diagnosed with Alzheimer’s. We named our group “DPD” – Daughters of Parents with Dementia. DPD became a testimonial to the need for a support system when a loved one is diagnosed with Alzheimer’s. Each new member found comfort in the knowledge that anything they were experiencing or feeling was not unique tothem and their loved ones.

Alzheimer’s Services of the Capital Area is here to provide you with the many levels of support to help you in your everyday struggles in coping with the overwhelming diagnosis of Alzheimer’s.

Marcia L. Kirk, Respite Center Coordinator Assistant

In Support of Adult Day Centers

The National Adult Day Services Association (NADSA) is the leading voice of the rapidly growing adult day services (ADS) industry and the national focal point for ADS providers. Members include adult day center providers, state associations of providers, corporations, educators, students, retired workers and others interested in working to build better lives for adults in adult day programs every day. NADSA is positively impacting the lives of participants, families, communities and our nation.

Having recently attended the NADSA conference and Board Meeting, it was interesting to learn trends in the day center industry. The keynote speaker, Lisa Gwyther, MSW, LCSW, noted that there has been a 35% increase in adult day centers in the United States since last year. She also noted that Family Care is changing. There are more sole caregivers. There is less secondary support. More adult child caregivers as well as male caregivers are surging to the forefront. Additionally, caregiving has an impact on employers as 12% of the American workforce are now primary caregivers.

And, the growing trend, according to Gwyther, is RESPITE care. Unfortunately, caregivers resist this arrangement. RESPITE is the most referred, the least available, and utilized less than any other community service. Caregivers struggle not only with the meaning of the term, but also with the knowledge of services, the stigma, the loss of control, and even with the disclosures of privacy issues.

Yet, like Charlie’s Place, adult day centers and RESPITE care can reduce isolation and bring a productive and purposeful day to a loved one, especially one struggling with Alzheimer’s disease or a related dementia disorder. The quality of life for individuals with this disease can be enhanced and enriched in these environments and these environments are as good for the care receiver as well as the caregiver. Caregivers have a chance to relax, run errands, and have time away from the responsibilities of caring for their loved ones. Significant improvement in caregiver and patient quality of life is evidenced because of Adult Day Centers.

Not surprisingly, Gwyther closed her presentation with a strong recommendation for Day Centers across the country to open dementia-specific centers and Respite Care to accommodate the growing need and the rising numbers of those who are affected by Alzheimer’s.

It was refreshing to know that Charlie’s Place is on the leading edge of RESPITE care and that our continuing efforts in programming and services lend to a quality of life for both our beloved clients and their caregivers. We salute each of you….our clients, our caregivers, and all our staff as we celebrate National Adult Day Services Week in September. We believe in NADSA’s motto as the commemorative poster states: “Adult Day Services – An older adult’s good friend. A disabled adult’s source of dignity. A valuable community resource.” Thanks for supporting us as we support all of you!

by Dana Territo, Director of Services

2010 Walk/Run to Remember PSA

We are very excited about this year's Walk/Run to Remember. The Walk/Run PSA was created with our Walk/Run Honorary Chair Rolfe McCollister Jr. and Political Consultant James Carville.

2010 Walk/Run to Remember
October 9, 2010
LSU "Old Front Nine

Registration 8:00 am
Race 9:00 am
Walk 9:10 am
Memory Market Exhibitors 8:00 am

Don't forget the register yourself or a team early at BRhope .com. See you there!

Activity Ideas for Someone with Alzheimer's

Listed below are activity ideas for someone with Alzheimer's

1. Rake leaves
2. Use the carpet sweeper
3. Read out loud
4. Feed fish and care for the tank
5. Look up names in the phone book
6. Read the daily paper out loud
7. Ask someone to visit
8. Listen to music
9. Plant seeds indoors or out
10. Look at family photographs
11. Clean & top up the bird bath
12. Weed the flower bed
13. Fold clothes
14. Have a friend visit with a calm pet
15. Cut pictures out of greeting cards
16. Polish silverware
17. Baking / mixing
18. Sort objects by shape or color
19. Sing old songs
20. Go for a drive/ride
21. Take a walk
22. Reminisce about 1st day of school
23. Ask simple trivia questions
24. Make a salad
25. Sweep the patio
26. Fold towels
27. Have afternoon tea
28. Paint a picture
29. Cut out paper shapes
30. Make a family tree poster
31. Put feed out for the birds
32. Water house plants
33. Reminisce about the first kiss
34. Dance
35. Sing favorite hymns
36. Make homemade ice cream
37. Make Christmas / Birthday cards
38. Write a letter to a family member
39. Make popcorn
40. Give a manicure
41. Dusting
42. Finish famous sayings
43. Feed the ducks
44. Mold with play dough
45. Put a puzzle together
46. Polish wood
47. Rub in hand lotion
48. Arrange fresh flowers
49. Remember famous people
50. Straighten out underwear drawer

Julie D. Brewer, MA
Program Coordinator/Respite Administrator

The Male Caregiver---In Appreciation of YOU!

Caregiving for persons with Alzheimer's disease can pose significant challenges to the health of the spousal caregiver, due to perceived stressfulness---and the need for leisure satisfaction or activity offers important implications for the maintenance of a good health status for spousal caregivers. However, caregiving literature most often focuses on the female caregiver, while it is currently estimated that men make up nearly 40 percent of family care providers. This leads to questioning about the generalizations of certain literature to the male caregiver.

On 15 surveyed men who are caregivers of a loved one with Alzheimer’s, according to research studies conducted by Emory University and the University of Alabama at Birmingham, results indicated that male spouse caregivers generally have poorer mental and physical health, in comparison with non-caregiving men. Particularly, caregiving men showed higher levels of depression, respiratory system symptoms and overall poorer levels of health habits.

With this said… and in honor of our recently passed Father’s Day weekend, I send a special acknowledgment to every male caregiver whose eyes may happen upon these words. Whether you find yourself as a son or a son-in-law, a brother or brother-in-law, a nephew, uncle, father-to-be or a seasoned dad or granddad, you are recognized, honored, and appreciated for all of the wonderful things that you do to keep your family strong, encouraged, and steadily moving forward through the changes and challenges that occur in dealing with this disease.

Many of these ideas can be enjoyable for anyone, but these 20 relaxation ideas are for YOU --- the man who serves as a caregiver for a loved one with Alzheimer's disease. We are thinking of you!

1. Purchase tickets to see your favorite sports team
2. Schedule frequent visits to the golf course
3. Learn to cook a new dish
4. Enjoy a movie marathon of your oldies, but goodies
5. Take a fishing trip
6. Make time for bowling
7. Go for a walk/hike on a scenic trail
8. Visit a brewery for tasting or
9. Visit a few wineries for wine tasting
10. Take a day to relax at the beach or your choice of a peaceful get-a-way
11. Participate in a support group
12. Exercise on the average of three times per week and maintain a healthy diet
13. Establish time for personal meditation or reflection
14. Practice effective time management
15. Stay involved in whatever hobbies you enjoy
16. Plan a backyard barbeque for those closest to you
17. Get a massage
18. Go for a drive
19. Listen to your favorite music or schedule to hear your favorite band
20. Vary your caregiving responsibilities amongst other family members, friends, or professionals (so that you can find time to do any of these great things and more…!)

Rashida Keith/ Program Coordinator

Moments with Red, White and Blue Memories

Willie Mae, flashing a white napkin in the air, led a line dance to “When the Saints Go Marching In.” Sonny rarely rested, his feet carrying him on the dance floor at every turn. Mable said “I like to have fun.” Margaret told the band they would have to stay longer. Dale twirled the ladies, and they dizzily abided. A gentle couple…he dressed smartly in a suit and bow tie, and her in her Sunday best, left gratefully, saying, “Oh, such wonderful memories! Thank you!”

Rose Fitzgerald Kennedy once said that Life is not a matter of making milestones, but of moments. And such we did for a few hours on a recent Sunday afternoon at our “Red, White and Blue Memories” event sponsored by the Walmart Foundation for our Charlie’s Place clients and families. With the sounds of Ned Fasullo and his Big Band Orchestra, families danced, laughed and talked, shared memories and moments, and generally, put the future and their worries aside.

The dance floor was never bare as daughters and sons danced with moms, grandchildren with granddads, daughters with their fathers, and friends with more friends. As the Waltz, Rumba, and ChaCha dances were demonstrated by Ballroom Dancers Cecil and Neila Phillips, days of yesteryear and thoughts of Fred Astaire and Ginger Rogers certainly conjured in everyone’s heads. Songs like “In the Mood,” “Midnight Serenade,” and “Fly Me to the Moon,” kept toes tapping and feet swaying across a room filled mostly with what news anchorman, Tom Brokaw terms, The Greatest Generation, those who matured during the Great Depression and the Second World War and went on to build contemporary America.

They ARE the greatest generation…brought together for a common purpose with common values, like duty and honor, and service and love, the latter shown so transparently on the faces of all those present that day. And, might I emphasize duty and honor---how extraordinary these families and caregivers are who daily care for their loved ones with Alzheimer’s disease, and how special are those loved ones experiencing this debilitating brain disorder!

On an exceptional Sunday afternoon, we all MADE many moments, as Rose Kennedy put it; however, personally, my moments were those when I witnessed the faces of joy of this union of this greatest generation. For they all enjoyed a time that stood still, traveling back to an era so familiar and relishing lives, bygone days and music, which all, for a few short hours, remained seemingly unchanged for them. Their moments, like mine, were capsulated in an hour-glass with no sand as the hands of time were oblivious to the face of Alzheimer’s disease.

I am grateful that I walked…rather…danced the journey with all of them.

Dana Territo


Programs Department: Shown from left to right: Ed Picard/Charlie's Place Respite Center Coordinator; Dana Territo/Director of Services; Rashida Keith/Programs Coordinator, and Julie Brewer/Programs Coordinator.

Summer is here and we are thinking of YOU

What a wonderful time of year. Summer is here, school is out, vacation and fun time is here, gardening and yard work is great, and . . . oh! So goes the daydreaming - YOU are a Caregiver. What a beautiful word - Caregiver: one who "gives care" to another in need of care. And yes, it also means that things change. Longer hours, changes in schedules, moving rugs and furniture, additional night lighting indoors, different door/window locking mechanisms, and other changes. Each Caregiver will have unique circumstances and obstacles to overcome that will take time and may come in time. However, my Caregiver friend; You Are Not Alone. Alzheimer's Services of the Capital Area in Baton Rouge is here to help guide you through your transition.

A "sense" of normalcy is important relating to time of year, seasons, retaining their "my familiar home" place; even with your home. Here are a few suggestions to assist you in your daily venture.

1. Have them decorate their room(s) with their personal belongings. Even if somewhat abstract, let them have things where they are comfortable, if possible.
2. Use basic inexpensive decorations inside the house for holidays, even Valentine's Day, Mardi Gras, St. Patrick's Day, Spring, Summer, etc. . . This will assist in keeping them oriented to time of year/season. They are a great visual/sensory stimulator.
3. Whenever possible, let them assist you with tasks. Basic gardening, simple kitchen or household tasks, light shopping. Shopping should be at smaller stores with less "acreage" to walk and parking close to the store as not to fatigue before the shopping is completed.
4. If they previously attended church and social clubs, allow them to continue as long as they are able. They can also join local clubs that fit their age, interests, and abilities. Encourage interaction, not isolation. Charlie's Place Respite Center is located in a addition to the Alzheimer's Services of the Capital Area building.
5. Ask your family member what they would like to do. If they are not sure, give them suggestions of things they previously had an interest in. Though they may shy away from past enjoyment since they may realize they have changed. Continue to encourage them with what they are able to do. Everyone likes to be appreciated.

Note: Try to avoid tasks that are tedious, have multiple steps, or are physically/mentally straining. Choose simple tasks that are easy to understand and be patient. They may prefer their favorite music, instrumental music or quiet when performing tasks. It is easier to talk without television or distractions. Change tactics to see which ones work best for you both. During time together, talk as you would to others, using a more clear and unhurried speech. Have their hearing checked regularly to insure they are hearing you and others talking to them. It is important they feel included, not excluded. Say "If this were me, what would I like/dislike? How would I feel?"

If your family member is still caring for most of their own personal needs and are comfortable with LIGHT travel, then here are some tips.

1. Keep the temperature comfortable, i.e., not too hot, not too cold. (You may need to have a light sweater or thin blanket and/or ice pack available.)
2. When traveling in a vehicle, take an ice chest/cooler with water, soft drinks, diabetic soda's if necessary, and snacks.
3. Have Medic Alert bracelet/necklace with allergies. Safe Return is also very vital for those with dementia or Alzheimer's. Sew a label with name and complete phone number in clothing in an inconspicuous place if bracelet/necklace is lost.

Long distance trips may not be appropriate and safe for some. If they are uncomfortable, nervous, or afraid around crowds, loud speakers (airports), constant talking, confusing directions, fast paced situations, being rushed or claustrophobic, may cause further fear, frustration, withdrawal, and agitation.

• Mini day trips are great. Just remember, you want the trip to be fun, safe, and enjoyable. Avoid holidays and in the summer after lunch. Avoid fast-paced time schedules. Take the time - Relax.
• An early morning weekday at the Mall with lunch.
• A trip to a Museum or an Art Gallery.
• Historical buildings/homes are usually relaxing.
• Visit with friends, neighbors, nearby family members, and grandchildren.

Now for the summer fun you were dreaming about. If you need a day at the beauty shop, a night out on the town or to dinner, to run errands, a day trip or just a break. We would like to assist you to find those services you need. We are here for YOU.

T.L. Marler, QDCP
Respite Center Assistant

Living the Moment with Alzheimer’s Disease

Watching my first-born son hold his first-born son last October remains a poignant mental photograph that I will long carry with me. Hearing the words my son spoke that night was even more everlasting.

As he held my very first grandchild, only a few hours old, he looked at me and said, “Mom, just think, he is totally dependant on us…..24/7!”

Through my tears of joy I could only muster a smile and a nod of my head. Totally dependent, I thought. My son and his wife now joined the ranks of very important caregivers.

24/7. That’s a huge responsibility! Like having a small infant or child, caregivers of Alzheimer’s patients know all too well the reality of the unending days that oftentimes offer no relief, because their loved one is totally dependant on them.

But, perhaps, just as I savored that moment watching my son with his newborn, very important caregivers can find some joy in living the moment, too.

In his book, The Power of Now, Eckhart Tolle writes, “When you are present, you can allow the mind to be as it is without getting entangled in it.” All through the book Tolle stresses to his readers the importance of living the now…the present moment. “Unease, anxiety, tension, stress, worry — all forms of fear — are caused by too much future, and not enough presence. Guilt, regret, resentment, grievances, sadness, bitterness, and all forms of non-forgiveness are caused by too much past, and not enough presence.”

Tolle makes a lot of sense. All we really have is the moment. When it's gone we can never retrieve it. That’s why caregiving can be somewhat easier if the caregiver just lives in the present moment with their loved one. Trying to get their loved one to remember things is a senseless struggle, which can bring about much anxiety and often aggression in an individual with Alzheimer’s. Leave the past in the past. Any guilt and/or regrets on what the caregiver and/or Alzheimer’s patient could’ve/would’ve done only cloud the present moment. And, anxiety about things to come only evokes worry and a whole lot of unnecessary stress.

So, what's important in your life and the life of your loved one? Did your loved one enjoy a nice ride in the car on one of these beautiful Spring days? Did you laugh together at mealtime, or share in the joy of visiting other family members and/or friends? Are you spending your time and energy on those very special moments? What does it matter that your loved one will not remember what you did in a few hours or the next day? Just for that moment, you were in that special place with him/her, and both of you were totally free of any entanglement. And, tomorrow is another day. We cannot forecast the turn of another day, so try to put away all anxious thoughts and worries. The real joy is in the present moment.

Instead of thinking of that seemingly hopeless image of 24/7 and the total dependence your loved one has on you, try being in the now. Living one day-one moment- at a time, doing the things you and your loved one enjoy, things that bring meaning and fulfillment to your lives renders a fresh start at every moment.

-Dana Territo

The Buzz Around Town

A kick-off training session and lunch was held on February 25, for the 2010 Memories in the Making Table Hosts. The theme for the day was BEE here as Table Host Spring into Action! Bumble bees, spring flowers and a spring luncheon with Dirt Cake and gummy worms completed the theme for the day. Table Hosts shared the B z-z-z-z with each other about why they are involved with Alzheimer’s Services. The Memories in the Making Luncheon is the number one awareness and fundraising event for Alzheimer’s Services and will be held on May 13^th at the Crowne Plaza Hotel. If anyone is interested in how they can get involved with the Memories Luncheon, please call Debbie at 334-7494

Meet the Intern

As a new face at Alzheimer's Services, I am learning the ins and outs of the organization as I shadow the footsteps of Program Coordinator, Julie Brewer. My basic understanding of Alzheimer's disease has expanded through Dementia Care training and programs such as "A Cause to Remember" and "Sharing the Journey." Though the majority of my work has been assisting with Education Conference preparations, I have learned through Caregiver Network Meetings and the Helpline that working here requires one part compassion and one part resourcefulness - something the staff have and offer quite well. I am learning to keep my heart open, time flexible, and planner handy!

Kathleen Keen
Program Intern
Masters in Health Candidate
Southeastern Louisiana University

Charlie's Place Respite Center Activity

Clients at Charlie's Place respite center enjoy an activity called TimeSlips. This is one of many activities the clients enjoy everyday. The clients look at the photo and give there version of what the photo is about. Below are the stories that they told about the photo o the left.

There is a young boy playing an instrument. They call him Shorty because his is short. He is healthy because his is fat. Shorty is about 7 or 9 years old. He is from Plaquemine. His eyes are closed because his is blowing so hard. He is thinking about trying to play. His playing a tuba. I know his isn't singing my song. His playing music. He got his dad's instrument and is trying to play it. Shorty is working hard to do it. He is playing "Allons de Lafayette." He is trying to get enough air out of his stomach to blow because his trying to play loud. Shorty is standing in a studio next to a brick building. It is not dark outside, the wind is blowing and the sun is shining outside. He is playing in the studio alone. He didn't sneak in, he is supposed to be there. He was practicing and eating peanut butter before he started playing in the studio. There is music on the floor, a bunch of little sheets of music. Shorty blew his instrument and air blew stuff on the floor. He was blowing hard and it looks like he is trying to dance. I bet he is a good little dancer and singer, "but I can tell you one thing, he is having fun." He is dirty because he ran out into the mud and because he is a boy. His eyes are closed because mom is coming to pick him up. When he is done playing, he is going to sit down and rest. But for now, "all I can say, is he is having a good time."

The Rhythm the Beat of another Day

A poem by: Jacqueline Gales

As the Sun gently serenade over the eastern sky and soft droplets of dew cover blades of grass near the lake, and as the brush of the morning breeze passes by the daylilies, it begins the rhythm the beat of another day.

As blackbirds with their beautiful iridescent feathers launch their attempt to locate their cuisine, it begins the rhythm the beat of another day.

As doves coo they wobble back and forth on a stony path in search of a nibble or morsel left by the blackbirds, it begins the rhythm the beat of another day.

As humming birds flutter around the golden honeysuckles awaiting the enjoyment of its delicious nectar, it begins the rhythm the beat of another day.

As squirrels hustle up and down the Pecan tree burrowing on the ground in hopes of a hidden stash, it begins the rhythm the beat of another day.

As I watch in awe as the morning unfolds before me in its breathtaking splendor.

As I am unable to express the marvelous beauty of what I see, I reach for words that will describe this captivating rhythm. Yet the harder I try the more difficult and complicated the search becomes.

As to what makes the search so demanding? It's this dilemma they call Alzheimer's. Nevertheless all of what I see unfolds the beauty, which begins the rhythm the beat of another day.

The Voice of a Caregiver

I read a story recently about an elderly man who paced the floor of a doctor's office early one morning waiting for an appointment. A nurse finally observed his anxiousness and asked him if something was wrong. He told her that if he didn't get to see the doctor soon, he would be late to have breakfast with his wife. The nurse assured him it would only be a few minutes more, yet the worried man shook his head and told her he would have to go, that he ate breakfast with his wife every morning at the nursing home. " My wife has Alzheimer's," he told the nurse. The nurse, rather taken aback, then asked him, "And you still go every morning, even though she doesn't know who you are?" He looked at the nurse, smiling and patting her on the back. "She doesn't know me, but I still know who she is."

Three months ago I lost a dear friend to Alzheimer's. She was 102 years old and I had been visiting her in the nursing home for over 22 years. When I happened on the aforementioned story, it made me think of her, because in those many years, she never knew who I was. She didn't speak my name. She never asked about my family. In the later years, she never spoke. However, my time with her grew more precious each visit, for I knew who SHE was. She was vibrant and full of life in her heyday. She loved people and pets and most of all, music that made her kick up her heels. Her eyes danced when we would sing old songs together, and holding her hand cemented a mutual connection of our unique bond. Our journey each day brought me closer to knowing who she was than caring that she ever knew me. It was a grace for me to know and love the person that was her.
Alzheimer's robs the brain of the ability to recognize others, but the elderly man in the story recognized and honored the person in his wife. I endeavored each day to honor my special friend at the nursing home, even more so now after her death.

What a gift it would be to all those suffering from Alzheimer's that their caregivers find a way, through the struggles and heartache of this arduous journey, to stop just for a few minutes a day and recognize the person behind the disease, to say to themselves, "She doesn't recognize me, but I still know who she is." After all, isn't that the wish of every human being. . .to be acknowledged for who we are?

Alzheimer's disease doesn't change that. It just changes the way others look at it.

Dana Territo, Director of Services